Hi Rebecca,
I currently take AlphaCurcumin Plus from The Really Healthy Company who are a UK company. See my posting from 12 Sep as to as to the reasons for choosing those but it is a minefield! I did say in that that it “contained” BCM-95 but I now realise that is the “type” of Curcumin – also referred to as Biocurcumin or Curcumax I think.
Phil

Hi Stanley,
Thanks for prompt reply. Yes I did mean 8g per day!
Regards
Phil

I have just taken out an annual policy worldwide (excl USA) with World First for £134. The annual policy was only £4 more than a single trip policy to Dubai for 3 weeks! Last year an annual policy (inc USA) was cheaper than 2 single trip policies for a week in Vegas and a week in Egypt.
World First do use a different questionnaire to most the c…[Read more]

I have just taken out an annual policy worldwide (excl USA) with World First for £134. The annual policy was only £4 more than a single trip policy to Dubai for 3 weeks! Last year an annual policy (inc USA) was cheaper than 2 single trip policies for a week in Vegas and a week in Egypt.
World First do use a diffrent questionnaire to most the c…[Read more]

Hi,
I realise it is quite a while since any posting on this chain but I thought I’d keep it all together rather than starting a new one!
I had my 2nd SCT in Jan 15 and my pp is now undetectable for the 1st time since diagnosis 3.5 yrs ago. As i am not on any form of maintenance I have decided to give Curcumin a try as I felt it can’t do any harm.…[Read more]

Hi,
I realise it is quite a while since any posting on this chain but I thought I’d keep it all together rather than starting a new one!
I had my 2nd SCT in Jan 15 and my pp is now undetectable for the 1st time since diagnosis 3.5 yrs ago. As i am not on any form of maintenance I have decided to give Curcumin a try as I felt it can’t do any harm.…[Read more]

Hi Ali,
Thanks for the info. Yes, I have tried anti-histamines of one sort or another as my skin has generally been extra sensitive since my SCT and i think they do help a bit. Fortunately I've not had any physical side effects so its really frustrating about the neutrophils, I want to jet off somewehere for a holiday!
All the best
Phil

Hi,
I got randomised to Revlimid and Vorinostat at beginning of Jan. It was with some reluctance as I had felt great since my SCT on no medication, but decided that if it could prolong my life I'd got to go with it. Blood counts dropped slightly for the first 3 weeks but on week 4 (when ironically you dont take anything) I became neutropenic,…[Read more]

Hi Vanessa,
I was diagnosed in Mar 12 aged 47 with a biopsy of 95% plasma cells and a pp of 73. After 6 cycles of CTD they'd got me down to 4% on biopsy and pp of 6.4. However, as soon as I stopped the treatment my pp started to increase again and so my SCT was made urgent. The last pp measurement taken before my SCT was 13.9 and I was keen to…[Read more]

Hi,
Thanks for the advice. Going back to Megan's dilemma, I'm not a "jewellery" man either, but being single probably makes it even more important for me that I do wear something as I may be alone if and when something happened, and as I previously did do a lot of travelling, some of it on my own, and would like to start again, it is obviously…[Read more]

Hi,
I agree with Wendy. My consultant has basically said I can do whatever I like providing it doesn't cause any discomfort. I've done an hour in the gym twice this week followed by half hour swim and did a 7 mile walk on Wednesday. I swam right through my induction treatment at the local council pool without any problems at all. I even managed…[Read more]

Hi Mike,
Best of luck with your SCT. Hopefully it won't be as bad as you expect it to be, mine wasn't. Just keep sucking the ice and mouthwashing and stay positive!
All the best
Phil

Hi All,
Yes, good news last week. Neuts up over 1 so everything heading in the right direction.
Chris, hope you're recovering well and are back on the bike before Christmas (weather permitting!)!
Best Wishes to all
Phil

Hi,
Thanks for the reassuring replies. I'm probably a bit paranoid because although my induction treatment (CTD)worked really well (reducing BMB from 95% to 4% and p-p from 73 down to 6.4) as soon as I finished, my p-p started to rise again and had doubled within 5 weeks. Anyway, next appt tomorrow so fingers crossed!
Phil

Hi Nettie,
Contrary to the majority of comments, I swam 3 times a week at my local public baths all the way through my induction treatment (CDT) without any problems and it kept me sane! My medical team were aware of this and did not advise me that I shouldn't. I've had to stop now following my SCT but will do again when i'm fully recovered and…[Read more]

Hi Michele,
Thanks for your reply. As I understand it you were only neutropenic as a result of your chemo. Did you become so again after your count hit 2.5? I'm still neutropenic 6 weeks post transplant.
Thanks
Phil

Hi,
Thanks to all for the prompt advice (Dai, Helen, Mari). Yes, I have had the full work up in terms of skeletal survey and MRI and they are pretty clear. I agree that physiotherapy itself would probably would be too aggressive, however I work for the NHS (30 yrs!) and our occupational physio is very conservative and does more than just physio…[Read more]