Myeloma Forum | philhove | Activity

philhove replied to the topic DT Pace in the forum Treatment

Wed, 03 May 2017 16:11:18 +0100

Hello Lillian , I had two rounds of DTPACE (with velcade thrown in for good luck ) 3 years ago after my initial treatments (CTD, VTD ) didn’t work . Since then I have been in remission and on Revlimid maintenance so tell your husband to hang in there . I found the worst part of DTPACE was being tied to the drip pump for 96 hours non stop . Good Luck .

philhove replied to the topic Holiday insurance in the forum General

Fri, 13 Jan 2017 16:45:47 +0000

Hi Jan,
I got a years policy Which comes free with a nationwide flex plus account. It’s valid for worldwide trips of up to 31 days. I paid a £120 loading because of myeloma – they run through a series of questions over the phone . I m 59 , been in remission for 2 years currently on revlimid maintenance .I haven’t had to make a claim .
Phil

philhove replied to the topic D t pace in the forum Newcomers

Sun, 30 Oct 2016 14:07:29 +0000

Hello , I had 2 cycles of DTPACE (with velcade thrown in as an extra ) nearly 3 years ago. There were 28 days between cycles . This was part of my “initial treatment” after I had little success with CTD and VTD. I was 56 when I had the treatment .
Each time I stayed in hospital for 5 nights , then came out for about a week and then stayed a…[Read more]

philhove replied to the topic Royal Marsden Myeloma Specialist in the forum Treatment

Tue, 03 Mar 2015 16:25:58 +0000

Hi Matt,
The lead myeloma consultant at the Marsden is Martin Kaiser – I haven’t seen him but others speak highly of him . Since Gareth Morgan and Faith Davies left to go to the US last year the Marsden has been short staffed. I’ve been going there for 15 months and mainly see a locum consultant Konstantinoas Liapis who is also good . The only…[Read more]

philhove started the topic Anyone with experience of Etoposide as a primer for sct in the forum Treatment

Sun, 07 Dec 2014 17:31:01 +0000

I failed stem cell harvests last march using cyclophosamide as a prime and then in april using mozobil . Now the docs are proposing etoposide . Does anyone have experience of this .
Prior to the earlier failed attempts I was on 2 cycles of CDT , then 5 cycles of VDT – these didn’t work and I then went on 2 cycles of VDT PACE which worked but my…[Read more]