philhove

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  • #133274

    philhove
    Participant

    Hello Lillian , I had two rounds of DTPACE (with velcade thrown in for good luck ) 3 years ago after my initial treatments (CTD, VTD ) didn’t work . Since then I have been in remission and on Revlimid maintenance so tell your husband to hang in there . I found the worst part of DTPACE was being tied to the drip pump for 96 hours non stop . Good Luck .

    #131525

    philhove
    Participant

    Hi Jan,
    I got a years policy Which comes free with a nationwide flex plus account. It’s valid for worldwide trips of up to 31 days. I paid a £120 loading because of myeloma – they run through a series of questions over the phone . I m 59 , been in remission for 2 years currently on revlimid maintenance .I haven’t had to make a claim .
    Phil

    #130281

    philhove
    Participant

    Hello , I had 2 cycles of DTPACE (with velcade thrown in as an extra ) nearly 3 years ago. There were 28 days between cycles . This was part of my “initial treatment” after I had little success with CTD and VTD. I was 56 when I had the treatment .
    Each time I stayed in hospital for 5 nights , then came out for about a week and then stayed a further 2 or 3 nights while I was neutropenic. I was lucky and had few side effects other than losing all my head and body hair . The first time my ankles swelled up due to retained water ,the second time I asked for diuretics from the start and this prevented the problem . I had no GI problems , in fact put on weight whilst in hospital . For me the biggest problem was getting used to being on the chemo pump for 96 hours non stop (although I did get adept at taking the machine for walks and dragging it into the shower ). I also didn’t like having a hickman line.
    The treatment was successful and the plan was to go on and have a stem cell transplant however this failed as I couldn’t produce enough stem cells . I am now in remission and have been on Revlimid maintenance since and am fit and healthy . I hope the treatment works for you.

    #121119

    philhove
    Participant

    Hi Matt,
    The lead myeloma consultant at the Marsden is Martin Kaiser – I haven’t seen him but others speak highly of him . Since Gareth Morgan and Faith Davies left to go to the US last year the Marsden has been short staffed. I’ve been going there for 15 months and mainly see a locum consultant Konstantinoas Liapis who is also good . The only problem with the Marsden is its very busy , clinics are always overbooked due to demand.
    Hope this helps.
    Phil

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