piatkaz replied to the topic trial mini allo in the forum Treatment 13 years, 10 months ago
Hi All
Just to let you know I've had my mini allo trial June 25th and am out of hospital after 15 days,feeling well just need to physically build my strength up,when having ATG (antibodies) got a reaction which the nurses seemed to expect and was quite poorly for 4 – 5 days.
Ian
piatkaz replied to the topic trial mini allo in the forum Treatment 13 years, 11 months ago
Thanks very much all
Really nice to hear you doing well Shirley,and Dai I will have my laptop whilst in hospital so as long as I'm feeling well I will keep in touch
Ian
piatkaz started the topic trial mini allo. in the forum Treatment 13 years, 11 months ago
Hi all
Just to let you know I go in for my trial mini allo 20th June,had hectic day at Birmingham hospital yesterday had all the checks lungs,heart,kidneys,bone marrow biopsy,meeting with radioligist,blood tests and meeting with specialist to sign consent forms
Ian
piatkaz replied to the topic All going to Plan in the forum Treatment 14 years ago
Hi Kieth
Sorry for the lack of response,I've just been through what you are, went on velcade and dex and had my 2nd SCT middle of Jan (1st one was in May 08)I know we are all different but I found this one much easier than the 1st and was released after 14 days.
All the best Ian
piatkaz replied to the topic Some good news at long last in the forum General 14 years, 1 month ago
Hi Shirley
Fantastic news so good to hear positive news on the allo front I should be having mine around June all the best
Ian
piatkaz started the topic 2nd Auto SCT. in the forum Treatment 14 years, 1 month ago
Hi
I had my second auto in Jan this year my first auto was in 08 which I didnt get a complete remission only a plateau and got 18 months remission from this.The second one in Jan 2011 I got a complete remission with the use of velcade, I've been told I will get only approx half the 18 months I got with the first one does anyone know of anyone who…[Read more]
piatkaz replied to the topic SCT What to Pack? in the forum General 14 years, 2 months ago
Hi Sarah
If you can get some audiobooks because as stated before its hard to concentrate at times and with the audiobook you can chill and listen with the headphones on,I've had 2 transplants now and on the first one I had terrible troubles with mouth ulcers but on the 2nd I used ice lollies to suck on durring the melphalan and my mouth was…[Read more]
piatkaz replied to the topic update on allo sct in the forum Treatment 14 years, 4 months ago
Hi Shirley
I'm so happy for you that alls going well and no sore mouth did you use ice cubes or is it a bit different from an auto,I've been waiting since 27th Dec for my auto but no beds at moment,I'll be having a allo 3 months after my auto mine will be a mini was yours a mini or full keep the updates going
Ian xx
piatkaz replied to the topic I got here at last in the forum General 14 years, 6 months ago
Hi all
Just trying out the new web site after eventually getting in so lets hope for the best
Ian Piatczanyn
