Just checking to see if anyone has the same symptons its when I take re,cyclo and dx within a day of taking these my fingers cramp and lock in together I have to force the fingers out and and stretch them with a few aches,It’s doesnt allow me to hold things with my fingers such as pen, knife and folk etc this only usually lasts for the…[Read more]

I’ve had a tanderm transplant auto then a mini allo using my brothers cells in 2011 only got a year out of the allo but we are all different currently on rev and cyclo I was diagnosed in 2008 Jan and still here.I found the actual allo alot easier to get over as you dont have a high dose chemo.Like someone else mentioned there are a lot…[Read more]

Yes i had the husky and high pitch voice whilst on Dex am still on it and still get it also suffer with hiccups for the days I'm on dex.Hope all goes well for you.
Ian

Welcome to the site,Sorry cant help with the issue with kidney problems I just have issues with bone damage but after treatment,radiotherapy and surgery I'm doing well.I see you mentioned eye trouble I am on Velcade also, This is the second time I've had Velcade on the first lot of treatments (Nov 2010)I suffered with eye trouble…[Read more]

good luck with the x-ray I'm sure it's nothing you didnt look that old on fb with the skipping rope nimble feet you still have
Ian

Thanks Ian

I'm feeling really well at the moment I had issues with gvhd but mainly skin issues itchy palms and all the skin peeling off,itchy eyes,skin all over coated in a red rash still a very slight red tinge on my chest had a skin biopsy to prove it was gvhd.I have been lucky that it hasnt got to my organs so far so have been lucky havent…[Read more]

I had an auto in January 2011 then a mini allo in June (brothers cells)It's been 9 months since my allo and at the moment all is still going really well,but as Shirley says you've got to watch out for the gvhd.The mini allo is designed to reduce the chances of the gvhd of which I've had three bouts of but all minor.ask as many…[Read more]

Its 90+ days post my mini allo using my brothers cells just got all my results back from the bone marrow biopsy I am still in complete remission my immune system is now 99% my brothers and my T cells are 95%,I've had low forms of gvhd (even had a skin biopsy to prove it) red skin rashes itchy eyes and itchy scalp,hoping to be really…[Read more]

Hope all goes well and they sort that pain out
Look after yourself
Ian x

Hope all goes well and they sort that pain out
Look after yourself
Ian x

Just to let you know I've had my mini allo trial June 25th and am out of hospital after 15 days,feeling well just need to physically build my strength up,when having ATG (antibodies) got a reaction which the nurses seemed to expect and was quite poorly for 4 – 5 days.

Ian

Just to let you know I go in for my trial mini allo 20th June,had hectic day at Birmingham hospital yesterday had all the checks lungs,heart,kidneys,bone marrow biopsy,meeting with radioligist,blood tests and meeting with specialist to sign consent forms
Ian

If you can get some audiobooks because as stated before its hard to concentrate at times and with the audiobook you can chill and listen with the headphones on,I've had 2 transplants now and on the first one I had terrible troubles with mouth ulcers but on the 2nd I used ice lollies to suck on durring the melphalan and my mouth was…[Read more]

I'm so happy for you that alls going well and no sore mouth did you use ice cubes or is it a bit different from an auto,I've been waiting since 27th Dec for my auto but no beds at moment,I'll be having a allo 3 months after my auto mine will be a mini was yours a mini or full keep the updates going
Ian xx