IanPiatczanyn

  • Thankyou Myra and Mari,well 4 down and last one this afternoon,been a long week,i'm feeling ok with the fludarabine,its left me with the munchies hahaha,but come 8oclock at night i must say i'm ready for my bed,it does tire you out,but then sitting up the hospital for hours on end don't help either,but i'm good,and i'm ready for next week,my…[Read more]

  • shirley replied to the topic Michael is dying in the forum General 14 years, 4 months ago

    Hi Roz,i'm so sorry,my love,thoughts and prayers are with you,Micheal&Andrea. Best wishes Shirls x x x

  • shirley replied to the topic Another day arranged in the forum General 14 years, 5 months ago

    Hi Roz,good idea to write down the things you want to ask,and ask away, i'm so sorry Micheal is still not very good,but please don't go blaming yourself for him being like this,it will only lead you to more stress than you already have,i hope your meeting goes well tomorrow,you take great care and as always stay strong x x Shirls x x

  • Thanx everybody,had such a long afternoon up the hospital today,they asked me to come in for 3-30,but it was nearly 6oclock when they saw me,and it was so warm up there, i nearly drifted off hahaha,but all went well,back again tomorrow afternoon. I went into town earlier to get Steve's xmas present,which was a new mobile fone,and while i was there…[Read more]

  • Hi,well as my title say's i'm starting Fludarabine tomorrow,has anybody had this before if so how did you feel,. I had my hickman lines inserted Thursday just gone,been a little uncomfortable. Last time i had them i had them fitted in my right side,this time i had them fitted in my left side,bit more tricky then what the surgeon thought,but boy…[Read more]

  • shirley replied to the topic Not so good today in the forum Treatment 14 years, 5 months ago

    Dear Kevin,hi how are you today,hope you are feeling a little bit better,. Kevin i'm so sorry to hear that your allo sct failed you,not the type of news one wants to hear before all christmas festivities begin hey.Have they said what they are going to do next and can you have another allo done or no.And did they say why the allo failed. Sorry to…[Read more]

  • Dear Roz,as Bridget say's its good that the nurses are keeping in touch with Micheals progress,. You say your having abit of a low/tearful day,but hey thats allowed,you go ahead and have a good weep,you feel much better for doing so,i myself always feel better when i've had a bit of a weep. Hope they get to sort Micheal out very soon,you stay…[Read more]

  • shirley replied to the topic Postal Scam in the forum General 14 years, 5 months ago

    Hi Roz,i heard about that the other day,its terrible,people today don't seem to have any scruples do they,. Do they have a conscience or what,makes me wonder how they sleep at night,. Hope all is well with you & Micheal,have a good weekend take care Shirls x x x x

  • Hi Roz,i agree with what Bridget say's,you are a strong person,and you are allowed to cry,it probably done you good too,. You and Micheal must be so frustrated with everything thats going on,i know i would be,but as always stay strong and take care you, love Shirls x x x

  • Hi David, how you feeling this morning,hope you are feeling abit better today,. Just wanted to reply back about broadbands,i'm with BT,so i'm gonna ask if i need to get a dongle first,when i was in at the begining of the year,i had to get one,but because i'm having an allo,i get to have a differant room,(en suite with shower this time)like you…[Read more]

  • Hi Sharon,thankyou for that,i'm begining to feel nervous about it all,but know i'll be in good hands,got abit upset that i won't be spending much of xmas day with Stephen,cuz he's in the services he's got to work the night shift,but i do get to see him xmas morning,and i know i'll inundated with my family so its not that bad really. I am slighty…[Read more]

  • shirley replied to the topic Sugery????? in the forum Treatment 14 years, 5 months ago

    Hi Bridgett,i wish you lots of luck if you get to have surgery,and it'll be great if you were to get your sct earlier than planned too,good luck and take care Shirls x x

  • shirley replied to the topic Kyphoplasty in the forum Treatment 14 years, 5 months ago

    Hi Elizabeth,i had a procedure very similer to the kapoplasty(sorry if i spelt it wrong),i had a vertrebroplasty done,i had my spine cemented on my t11/t12,like you i had horrendous backache,it has left me stooping a little,i have lost height because my bottom vertebre has crumbled,i never got my height back,but i am a lot straighter in my spine,…[Read more]

  • Hi Roz, please get one thing very clear in your mind you are not to blame for Micheal being in hospital,he couldn't go on with the pain he was in,and as for his sister well i wouldn't take it to heart with what she say's,she's probably feeling a little guilty and lashing out,its still not nice,so don't take any notice. Keep strong and take care…[Read more]

  • Thanx David & Bridget,i'm sure all will be ok,. David i will be taking my laptop in with me,gotta invest in a dongle,i'll be able to keep everybody updated with how i'm doing,just keen to get in and get on with it now,feels like i've ready for ages,hahaha. Well i'm off some beauty sleep,nighty night Shirls x x

  • Hi,haven't posted for awhile still getting use to this new web site. Its been a funny old month for me this month,over the last few weeks i've been preparing to go in for my allo transplant,all was going well and then we got hit with a small blip,my sister who is my donor found she had a very low iron count,so the transplant that i should've had…[Read more]

  • Big hugs come my way Roz,don't ever blame yourself for Micheal being in hospital,he needed to be admitted at that time,as i always say and i know its hard for you at this difficult but stay strong,and we are all here for you,take care Shirls x x x x

  • shirley replied to the topic Musings from Ward 9 in the forum Treatment 14 years, 5 months ago

    Hi David just wanted to wish you well,your room sounds great,i'm in next month for my transplant. Hope everything goes really well for you and hopefully you could be home in time for christmas,best wishes Shirls x x:)

  • shirley replied to the topic So How is Your Day? in the forum Off topic 14 years, 5 months ago

    Ha hahahaha,very good,killing myself laffing,if anyone could see me they think i was off me rocker hahahaha,keep them coming 🙂 🙂 Shirls x x x

  • Hi Roz,life seems so unfair for you and Micheal once again,must be awful thinking he's almost there and looking forward to coming home again and then gets another blow,poor Micheal he must be so frustated,as always Roz you stay strong,and hopefully Micheal will be home soon even in time for xmas,take care Shirley x x

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