[piersdudgeonParticipant]

This is useful, thanks. There’s much written about the DVD experience, and you confirm what I hear elsewhere that ILD/IL is a good longterm option. If my wife can get over the COVID risk and take the DVD option first, which involves multiple hospital visits, then follow it with ILD when necessary, she’ll probably have the best that’s available right now. Her decision! Thanks again.

[piersdudgeonParticipant]

Interesting forum. 18 months after receiving Thalidomide, Velcade and Dexamethasone treatment my wife has relapsed and been given the choice by her NHS consultant for 2nd-line treatment of either DVD (Daratumumab/Velcade/Dexamethasone) or Isatuximab/Lenalidomide/Dexamethasone. There are various things to consider in making the choice, but one major concern is not to let her choice now limit her choice for subsequent treatments after relapse. Be very grateful if anyone has any views?? She has been told that she won’t be allowed DVD after ILD, but may be allowed Daratumumab on its own.

These things seem to be in constant review, but it is difficult to make the decision without the experience that would inform it.

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