Hi Mandy

The day you posted your sad news April 3rd I also got an email through from the Myeloma Beacon namely Pats Place a fellow sufferer stating( when the end isn’t the end ) it makes interesting reading and as far as I am conerned nothing is over until the curvey lady sings give it a read you may find it reasuring and hope you take some…[Read more]

Hi Tom

Same here when first introduced to Zometa some 18 months ago had a bad night with the said symptons very unpleasant floored mentioned it to my consultant so second time and thereafter given one piriton
tablet and 2 paracetamol some 20 minutes before a 30 minute infusion and that cured it never looked back hope this helps.

Polly

Hi Tom

Just to add my input on Zometa

I get daily emails from the Myloma Beacon with the latest news from America and Europe I am also hooked up to Andrew Schorr Patient Power and on occasions he talks to Dr James Berenson a leading myeloma expert
some time ago I recall a conversation regarding Zometa and how long you should be on it…[Read more]

Well hospital appointment today Tuesday at 9.15 for THE TREATMENT signed a few forms had a talk with consultant all done and dusted by 10.00 then directed to pharmacy for drugs which took them two and a half hours to prepare :-/ then back to nurse to go through the cocktail with me and what a cocktail it is apart from CDT you can add to the mix…[Read more]

Hi Tom as you say its best not to have notice of BMB takes some of the worry away before hand, and when I go for treatment tomorrow I shall take a hand full of your onwards and upwards with me along with one day at a time and hopefully I wont feel to bad on treatment 🙂

Hi Mavis I shall certainly keep a watch out for those shingles as for…[Read more]

Hi Vicki

Yes its a bit of a bummer to have to start treatment which I believe will be this Tuesday coming I have been randomised on the CDT arm which is a little disappointing due to the trials consultant realy selling to me how positive the RCD side of the trial has been with his other patients giving such good results but at the same time I…[Read more]

Hi Andy

Thanks for your advise and experience which I appreciate, thinking I might bomb it and let my husband do the injections for me as he has done it for himself when he had a dvt

Went to the hospital today thinking I was just signing the concent forms prior to treatment only to find a bmb sprung on me, well did not see that one coming,…[Read more]

Hi Ali as you say its the fear of the unknown that's scary but hopefully like your mum I will get through it..

Eve I shall not rub the site after the injection and thankyou for the tip

Tom I shall take your advise and take one day at a time.

Once again I would like to thank you all for the advise given today I feel a little more…[Read more]

Hi Eve and Jean

Thankyou so much for your kind welcome and advise I feel a bit more easy by the need to have the injections given the side affects of clots which sound nasty.

Eve I am so sorry to hear of your husbands experiance with the clots but please be assured your advise has been a big help to me.

Jean I so look forward to that…[Read more]

Hi Myra after my T7 vertebrae collapsed I was in a lot of pain with lack of mobility and life was grim I therefore decided to go for the op whereby they not only put in the cement but placed rods and screws in as well to stabilise the rest of my spine and prevent any further collapse all done through keyhole surgery, a year on and life and…[Read more]