Myeloma Forum | pauline22 | Activity https://forum.myeloma.org.uk/members/polly/activity/ Activity feed for pauline22. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 637ccf85e8d18f33d4fca36623ea46ee pauline22 replied to the topic CURCUMIN in the forum General http://www.myeloma.org.uk/forums/topic/curcumin1379683671/page/3/#post-125120 Wed, 25 Nov 2015 01:57:20 +0000 Hi everyone not been on hear for a while and just looking through your very interesting posts on what we all take to try to prolong our remission I personally take Pomi-t each day which contains four super foods squeezed into a capsule to boost my daily polyphenols which has been a government backed and scientifically tested in a national UK…[Read more]

]]> d8997c929c773019e25864038cb28504 pauline22 replied to the topic Vigilance - temperature and feeling unwell in the forum Treatment http://www.myeloma.org.uk/forums/topic/vigilance-temperature-and-feeling-unwell/page/2/#post-124553 Thu, 08 Oct 2015 12:08:38 +0100 Hi Andy

so pleased you’re OK and on the mend been quiet concerned about you, take care and listen to your body.

Onwards and upwards as Tom would say xxx

Polly

]]> edea8a25a5a61bcc62acaf099039a691 pauline22 replied to the topic Colin in the forum General http://www.myeloma.org.uk/forums/topic/colin/#post-123583 Sat, 15 Aug 2015 21:49:07 +0100 Dear Vicki

So very sorry to hear your news of Collins passing my heartfelt thoughts go out to you and your family at this very sad time.

Polly xxx

]]> 048522a2c961a70d0d5a6b59c32f4b17 pauline22 replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/page/3/#post-123033 Sun, 12 Jul 2015 10:36:41 +0100 What wonderful news congratulations to you both 💐 xx

]]> f4864171fa39b88240070a8b5693edb8 pauline22 replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/page/3/#post-123033 Sun, 12 Jul 2015 10:36:41 +0100 What wonderful news congratulations to you both 💐 xx

]]> 2ec9abe3c7ab65daf38d140b04f29b4c polly changed their profile picture https://forum.myeloma.org.uk/activity/p/39730/ Sun, 05 Jul 2015 21:14:29 +0100 0 d33dda0ae48a82c783b105aa7d7ae4a0 pauline22 replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/3/#post-122596 Sun, 14 Jun 2015 12:17:11 +0100 Hi Andrea

It’s all about steps and as time goes on you will regain your strength and pull away from feeling weak and tired as for the grey hair I decided to keep it because I wanted to take some control of my wellbeing and decided against adding chemicals to the mix even though you can have it done without touching your scalp nevertheless I…[Read more]

]]> 40d92a2bc7896e8eefb1d640c9cca375 polly changed their profile picture https://forum.myeloma.org.uk/activity/p/39345/ Sun, 07 Jun 2015 23:15:20 +0100 0 256b36c9c2d1b545899d85ebdf63de14 polly changed their profile picture https://forum.myeloma.org.uk/activity/p/39344/ Sun, 07 Jun 2015 23:13:53 +0100 0 c3ffd5a449807405373e805c49d6c3f3 pauline22 replied to the topic Myeloma X1 maintenance in the forum Side-effects http://www.myeloma.org.uk/forums/topic/myeloma-x1-maintenance/#post-121528 Thu, 02 Apr 2015 10:34:34 +0100 Hi

I have been a member of this forum for some time although I don’t post often I like to keep up to date with other members journey’s and overall I have shared the good the bad and the sad with you all. I have done the Myeloma X1 the chemo the SCT and all that jazz with the fallout of the before and after side effects I have noted people on…[Read more]

]]> 78c93d0fcb658504828eb782c7441da7 pauline22 replied to the topic Advice required - dilemma in the forum General http://www.myeloma.org.uk/forums/topic/advice-required-dilemma/#post-119979 Tue, 16 Dec 2014 00:26:06 +0000 Hi Chystal

Please don’t feel angry it’s just that this forum is for people who have multiple myeloma a cancer that at the moment is incurable and terminal therefore any fundraising by our family and friends goes towards research for this cruel disease in the hope of finding better treatments and a possible cure in the future, I truly hope you…[Read more]

]]> 91bda2bf166ee67ad05c84ddcb5dca68 pauline22 replied to the topic Advice required - dilemma in the forum General http://www.myeloma.org.uk/forums/topic/advice-required-dilemma/#post-119967 Sun, 14 Dec 2014 21:25:22 +0000 Hi

Whilst I feel sad to hear what you have been through I have to agree with Tony this really isn’t the place to start a discussion on this subject and sincerely hope you find the right kind of forum of similar mindset to you to share your interest.

]]> 8abdee8f83961c7f25f969599741daae pauline22 replied to the topic Advice required - dilemma in the forum General http://www.myeloma.org.uk/forums/topic/advice-required-dilemma/#post-119967 Sun, 14 Dec 2014 21:25:22 +0000 Hi

Whilst I feel sad to hear what you have been through I have to agree with Tony this really isn’t the place to start a discussion on this subject and sincerely hope you find the right kind of forum of similar mindset to share your interest.

]]> 643bcd43567e35ef6e2af59ef33c1f60 pauline22 replied to the topic Help needed! in the forum General http://www.myeloma.org.uk/forums/topic/help-needed-2/#post-118254 Sun, 21 Sep 2014 09:43:05 +0100 Done 🙂

]]> d159549e0b6286bda818a600e9881ef4 pauline22 replied to the topic The pain is back... in the forum General http://www.myeloma.org.uk/forums/topic/the-pain-is-back/#post-118237 Fri, 19 Sep 2014 13:41:40 +0100 Hi Tom

You mention the pain is in the left rib as before could it not be a weak spot that’s now susceptible to all kinds of everyday things that we do without thinking especially when we feel better, it’s normal to get the jitters when pain comes especially nerve pain that can be a bitch my advise would be get it checked out if its worrying you…[Read more]

]]> 2438cdb2462e770202cde1f839756d1a pauline22 replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117867 Sun, 31 Aug 2014 21:52:05 +0100 Dear Eve

Deeply saddened to hear the news of Slims passing thinking of you at this sad time

Love Polly xx

]]> 57e003caf88865cbd17c4e3dddd2964a pauline22 replied to the topic Curcumin in the forum General http://www.myeloma.org.uk/forums/topic/curcumin-2/#post-116198 Tue, 24 Jun 2014 12:33:10 +0100 Yes there is a lot of nonsense out there regarding alternative shall we say trends however my own experience regarding complimentary medicine has been successful, firstly after the birth of my son in the 80s I came down with quite bad hayfever tried all the usual tablets and so forth whilst they where good the effects didn’t last and left me…[Read more]

]]> fe32f204b7e5cf05a106c2c9823e6903 polly changed their profile picture https://forum.myeloma.org.uk/activity/p/25566/ Sat, 14 Jun 2014 18:56:33 +0100 0 8eaf60af4ea2ca16a68c5b417b65361d polly changed their profile picture https://forum.myeloma.org.uk/activity/p/25563/ Sat, 14 Jun 2014 18:42:42 +0100 0 8947a0d3fa800484ab4b5bf8ceb08d2d pauline22 replied to the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/page/2/#post-114391 Wed, 09 Apr 2014 21:28:35 +0100 hi Mandy

Today I read another article from the Myeloma Beacon which again brought me back to you and your dilema and like our friend Eve who claims to be pleasantly plump lol said its a matter of attitude that will carry you a long way, and she is right , I consider this desease sly and deceitful and dos’nt care who you are, and so you’ must…[Read more]

]]> b3d0fad6ddfcd8afec4bea101102bbc6 pauline22 replied to the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/page/2/#post-114311 Sun, 06 Apr 2014 19:42:18 +0100 Hi Mandy

The day you posted your sad news April 3rd I also got an email through from the Myeloma Beacon namely Pats Place a fellow sufferer stating( when the end isn’t the end ) it makes interesting reading and as far as I am conerned nothing is over until the curvey lady sings give it a read you may find it reasuring and hope you take some…[Read more]

]]> fe1bb6533ab092f328ed5b5ec9f5abd5 polly changed their profile picture https://forum.myeloma.org.uk/activity/p/1494/ Sun, 09 Mar 2014 22:54:04 +0000 0 15b8ecd96468f8fad9ead2823e7fba3d polly changed their profile picture https://forum.myeloma.org.uk/activity/p/1488/ Sun, 09 Mar 2014 17:53:25 +0000 0 b02f7acf7b30f6b054d387d32f2496bc polly changed their profile picture https://forum.myeloma.org.uk/activity/p/1487/ Sun, 09 Mar 2014 17:50:03 +0000 0 aabc7e8ddd12bd806f96ab0c4ac36be9 pauline22 replied to the topic Zometa 'flu' in the forum Side-effects http://www.myeloma.org.uk/forums/topic/zometa-flu/page/2/#post-105051 Wed, 20 Mar 2013 20:52:27 +0000 Hi Tom

Same here when first introduced to Zometa some 18 months ago had a bad night with the said symptons very unpleasant floored mentioned it to my consultant so second time and thereafter given one piriton
tablet and 2 paracetamol some 20 minutes before a 30 minute infusion and that cured it never looked back hope this helps.

Polly

]]> 55fa293f45d8f39bf087fa750d26d9ae pauline22 replied to the topic Trials and maintenance therapies etc. in the forum Treatment http://www.myeloma.org.uk/forums/topic/trials-and-maintenance-therapies-etc#post-101161 Sun, 09 Dec 2012 14:42:58 +0000 Hi Tom

Just to add my input on Zometa

I get daily emails from the Myloma Beacon with the latest news from America and Europe I am also hooked up to Andrew Schorr Patient Power and on occasions he talks to Dr James Berenson a leading myeloma expert
some time ago I recall a conversation regarding Zometa and how long you should be on it…[Read more]

]]> fc4cd22218916738b61684b7b9075bda pauline22 replied to the topic starting treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-treatment/page/2/#post-86841 Wed, 31 Oct 2012 00:06:37 +0000 Well hospital appointment today Tuesday at 9.15 for THE TREATMENT signed a few forms had a talk with consultant all done and dusted by 10.00 then directed to pharmacy for drugs which took them two and a half hours to prepare :-/ then back to nurse to go through the cocktail with me and what a cocktail it is apart from CDT you can add to the mix…[Read more]

]]> bf7982966fda10ec4e9c2b6778a98443 pauline22 replied to the topic starting treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-treatment/page/2/#post-86838 Mon, 29 Oct 2012 22:16:37 +0000 Hi Tom as you say its best not to have notice of BMB takes some of the worry away before hand, and when I go for treatment tomorrow I shall take a hand full of your onwards and upwards with me along with one day at a time and hopefully I wont feel to bad on treatment 🙂

Hi Mavis I shall certainly keep a watch out for those shingles as for…[Read more]

]]> 42911fdce1e30998eec95414844df096 pauline22 replied to the topic starting treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-treatment#post-86835 Sun, 28 Oct 2012 13:35:49 +0000 Hi Vicki

Yes its a bit of a bummer to have to start treatment which I believe will be this Tuesday coming I have been randomised on the CDT arm which is a little disappointing due to the trials consultant realy selling to me how positive the RCD side of the trial has been with his other patients giving such good results but at the same time I…[Read more]

]]> 1eb8dec55868561cbca02109c3d9df2f pauline22 replied to the topic starting treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-treatment#post-86833 Tue, 23 Oct 2012 13:32:42 +0100 Hi Andy

Thanks for your advise and experience which I appreciate, thinking I might bomb it and let my husband do the injections for me as he has done it for himself when he had a dvt

Went to the hospital today thinking I was just signing the concent forms prior to treatment only to find a bmb sprung on me, well did not see that one coming,…[Read more]

]]> 21707ef89a4d804d49d133670758a9bb pauline22 replied to the topic starting treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-treatment#post-86831 Mon, 22 Oct 2012 23:19:18 +0100 Hi Ali as you say its the fear of the unknown that's scary but hopefully like your mum I will get through it..

Eve I shall not rub the site after the injection and thankyou for the tip

Tom I shall take your advise and take one day at a time.

Once again I would like to thank you all for the advise given today I feel a little more…[Read more]

]]> 816967eb53ed13cfdf76091551985c39 pauline22 replied to the topic starting treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-treatment#post-86826 Mon, 22 Oct 2012 17:37:49 +0100 Hi Eve and Jean

Thankyou so much for your kind welcome and advise I feel a bit more easy by the need to have the injections given the side affects of clots which sound nasty.

Eve I am so sorry to hear of your husbands experiance with the clots but please be assured your advise has been a big help to me.

Jean I so look forward to that…[Read more]

]]> d0b0a573e3b4410654b106365fba827e pauline22 started the topic starting treatment. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-treatment Mon, 22 Oct 2012 12:49:39 +0100 Hi everybody I feel like I know you all as I have been a member of the site for over a year and have quietly shared all your trials and tribulations, I am 58 and was diagnosed with a solitary plasmacytoma on my T7 vertebra in 2011 which was dealt with radiotherapy at clatterbridge followed by stabilation of my spine at the walton centre in…[Read more]

]]> 1c0841d55aa72ae1313b9ba8e2151b9f pauline22 replied to the topic Kyphoplasty in the forum General http://www.myeloma.org.uk/forums/topic/kyphoplasty1341573880#post-93104 Sat, 07 Jul 2012 15:43:34 +0100 Hi Myra after my T7 vertebrae collapsed I was in a lot of pain with lack of mobility and life was grim I therefore decided to go for the op whereby they not only put in the cement but placed rods and screws in as well to stabilise the rest of my spine and prevent any further collapse all done through keyhole surgery, a year on and life and…[Read more]

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