[pollyParticipant]

Hi Tom

Just to add my input on Zometa

I get daily emails from the Myloma Beacon with the latest news from America and Europe I am also hooked up to Andrew Schorr Patient Power and on occasions he talks to Dr James Berenson a leading myeloma expert
some time ago I recall a conversation regarding Zometa and how long you should be on it if I remember right Dr Berenson believed two years max with a one year break due to the fact that while it is an excellent form of treatment it also has its own drawbacks as in strenthening the bones it can eventually make them brittal and so a break was needed as I have been on Zometa for over twelve months I will be discussing this with my own consultant nearer the time.

Food for thought hope this helps

Take care and stay well

Polly

[pollyParticipant]

Well hospital appointment today Tuesday at 9.15 for THE TREATMENT signed a few forms had a talk with consultant all done and dusted by 10.00 then directed to pharmacy for drugs which took them two and a half hours to prepare :-/ then back to nurse to go through the cocktail with me and what a cocktail it is apart from CDT you can add to the mix kidney,shingle,anti-fungal,anti-sickness Tablets and not lets forget those little darlings the tinzaparin jabs but am sure you all know about these already, so here it is shall be starting treatment tomorrow Wednesday as by time the pharmacy had got their act together it was deemed to late to start it today but hey ho one day at a time sprinkle away.

Hi Vicki had a word with the trials consultant about the CDT arm and was reassured that this was still a very good treatment and as you say I shall put my faith in it 🙂

Take care and stay well

Polly

[pollyParticipant]

Hi Tom as you say its best not to have notice of BMB takes some of the worry away before hand, and when I go for treatment tomorrow I shall take a hand full of your onwards and upwards with me along with one day at a time and hopefully I wont feel to bad on treatment 🙂

Hi Mavis I shall certainly keep a watch out for those shingles as for warned is for armed and I thank you for that.

Take care and stay well

Polly

[pollyParticipant]

Hi Vicki

Yes its a bit of a bummer to have to start treatment which I believe will be this Tuesday coming I have been randomised on the CDT arm which is a little disappointing due to the trials consultant realy selling to me how positive the RCD side of the trial has been with his other patients giving such good results but at the same time I know that other people like Tom on this site have done realy well on CDT and so I shall keep this in mind as for the injections well needs must better than those clots I have been hearing about.

Take care and stay well

Polly

[pollyParticipant]

Hi Andy

Thanks for your advise and experience which I appreciate, thinking I might bomb it and let my husband do the injections for me as he has done it for himself when he had a dvt

Went to the hospital today thinking I was just signing the concent forms prior to treatment only to find a bmb sprung on me, well did not see that one coming, so here I am at home licking the wounds and ready for the fight, who dares wins bring it on.

Take care and stay well

Polly

[pollyParticipant]

Hi Ali as you say its the fear of the unknown that's scary but hopefully like your mum I will get through it..

Eve I shall not rub the site after the injection and thankyou for the tip

Tom I shall take your advise and take one day at a time.

Once again I would like to thank you all for the advise given today I feel a little more prepared and now I come out from under the blanket and as Tom would say onwards and upwards.

Take care and stay well

Polly

[pollyParticipant]

Hi Eve and Jean

Thankyou so much for your kind welcome and advise I feel a bit more easy by the need to have the injections given the side affects of clots which sound nasty.

Eve I am so sorry to hear of your husbands experiance with the clots but please be assured your advise has been a big help to me.

Jean I so look forward to that old hat moment as at the moment I feel a bit like the rabbit in the headlights.

Take care and stay well

Polly

[pollyParticipant]

Hi Myra after my T7 vertebrae collapsed I was in a lot of pain with lack of mobility and life was grim I therefore decided to go for the op whereby they not only put in the cement but placed rods and screws in as well to stabilise the rest of my spine and prevent any further collapse all done through keyhole surgery, a year on and life and mobility much improved however this is me and we are all individuals and I wanted to give myself the best chance of leading as normal life as I could and so I took what was on offer I cannot claim to be totaly pain free as yet mainly due to the fact that I am now more mobile and tend to over estimate my limitations after all its only been a year but as Tom would say onwards and upwards hope this helps

Polly

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