Hi all,
Thanks for the kind words and advice. It turned out the decision about when to travel home was taken out of my hands after all. My parents travelled 300 miles to bring me home to see Gran in time. The hospital discharged her a day early as she really deteriorated on Tuesday night/Wednesday morning.
She is now home and pleased to be there. All the family go over every day to the point of annoyance I’m sure. My grandfather really appreciates it and I’m sure my gran does too when she’s awake.
She has 4 carers a day and a McMillan nurse who stays over night. My gran just sleeps all the time, wakes up slightly confused, but most of all is working so hard to breathe.
Like you all said no one can know but herself when she will decide to leave us. I’ve thought a couple of times “This is it, she’s not said a word all day or when she does she is very confused, her breathing is all abdominal and she doesn’t want food” . Then I see her a few hours later or the next morning and she is bright and alert and telling you exactly how she wants her breakfast cooked which makes us all smile.