What I noticed most of all in perusing the posts when I stumbled upon this site was the beautiful caring support you offer one another. It is true that no one who hasnt been here can really understand.
I realized that we havent really had contact with anyone who actually has myeloma – all our contacts are with hematologists and health care professionals who have a lot of knowledge, and seem to care – but they are going by statistics and watching what other patients experience.
We live a three hour drive from the Ottawa General Hospital, where David has hematologists, and where he had his SCT. So for emergencies (and there have been quite a few)we go to our very small local hospital, and they communicate with the Ottawa team. We went once to a support group in Ottawa, but it is quite a drive, and they meet only 4 times a year, and it just hasnt worked again.
I like to knit and crochet too, as well as the sewing, and I try to have a knitting project on the go and ready to go, for those expected and unexpected trips to the hospital. I find it soothing and I guess maybe it is something in my life that I have control over!
Thank you all so much for your caring. It is tangible.
God bless,
Posie
