Myeloma Forum | potterman | Activity

potterman replied to the topic treatment in the forum Newcomers

Thu, 17 Dec 2015 08:16:09 +0000

Hi Andy. Yes her kidneys have recovered well, in June they were upto 87 per cent, however when we went for the September review they had dropped to 63 per cent but the consultant said that it was because she was not drinking the recommended 2 – 3 litres of liquids a day. Apart from that everything else was in range and they said they were very p…[Read more]

potterman replied to the topic treatment in the forum Newcomers

Tue, 15 Dec 2015 16:40:39 +0000

Hi Andy. Yes she started with a bad back which went on for six months before we finally got to see a specialist and within eight hours we were told to go to A&E with an overnight bag. Following some tests and xrays etc she was admitted to the Renal unit with kidney failure. They had dropped to sixteen per cent. She was eventually moved to the…[Read more]

potterman replied to the topic treatment in the forum Newcomers

Thu, 05 Nov 2015 06:01:02 +0000

Hi Andy. My partner was diagnosed in April 2014 with MM she was then 56. She had eight months of VCD and has had a complete response and has been in remission One year ago today 5th November since finishing her treatment. Just wondered what the next line of treatment would be when needed now that Rev and Pom have been taken away from people who…[Read more]

potterman started the topic treatment in the forum Newcomers

Wed, 21 Oct 2015 13:22:42 +0100

Hi there. Just wondered if anyone has had initial treatment of VCD and then just been off all treatment apart from Oxycontin for pain and a monthly Zometa infusion. My partner has done this and had a complete response and remission since last November. Are there any others outthere who have done the same or very similar.

potterman started the topic Andy in the forum General

Wed, 30 Sep 2015 15:02:25 +0100

Hi there to everyone. I haven’t posted much on here so far but I have read alot of Andy’s posts in the past. I just wondered if anyone knew how he was going on. ?

potterman replied to the topic Induction treatment in the forum Newcomers

Wed, 09 Sep 2015 09:28:01 +0100

Any info at all ?

potterman replied to the topic Induction treatment in the forum Newcomers

Mon, 07 Sep 2015 19:36:06 +0100

My partner had VCD from April 14 to Nov 14. Has been off all treatments since November apart from Oxycontin for pain and Zometa infusion once every four weeks. She has had a Complete Response and Remission since then. Dont know exactly what we can have now at first relapse. An sct has never been mentioned as an option. Dont know whats next. We a…[Read more]

potterman started the topic Induction treatment in the forum Newcomers

Mon, 07 Sep 2015 11:22:40 +0100

Now that Velcade is not available through the CDF what is the standard first treatment for MM by the NHS in England.

potterman replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General

Sun, 06 Sep 2015 09:25:39 +0100

Promises, promises, promises before they get in and then they back track. We need these drugs. They are proven to work no matter what the cost.

potterman started the topic What's next ? in the forum General

Sat, 05 Sep 2015 11:22:08 +0100

My partner was diagnosed in April 2014 with MM with kidney problems and bone involvement. She is 57 and underwent 8 months of treatment with VCD. She has been off all meds and had a complete response and in remission since last November. She just takes Oxycontin for her pain and a monthly infusion of Zometa. We are on three monthly reviews at t…[Read more]

potterman became a registered member

Sat, 05 Sep 2015 10:56:09 +0100