[pottermanParticipant]

Hi Andy. Yes her kidneys have recovered well, in June they were upto 87 per cent, however when we went for the September review they had dropped to 63 per cent but the consultant said that it was because she was not drinking the recommended 2 – 3 litres  of liquids a day.  Apart from that everything else was in range and they said they were very pleased. Thanks for replying before.

[pottermanParticipant]

Hi Andy. Yes she started with a bad back which went on for six months before we finally got to see a specialist and within eight hours we were told to go to A&E with an overnight  bag. Following some tests and xrays etc she was admitted to the Renal unit with kidney failure. They had dropped to sixteen per cent. She was eventually moved to the cNcer centre at Royal Stoke and was in for six weeks. She has lost amost  6inches in height and has bone involvement including her back. She had to learn to walk again and had eight cycles of VCD. She had a complete response and was in Remission officially from November 2014.  We have been on three monthly reviews and go for our next one this Friday 18th December. Keeping our fingers crossed for good news.

[pottermanParticipant]

Hi Andy. My partner was diagnosed in April 2014 with MM she was then 56. She had eight months of VCD and has had a complete response and has been in remission One year ago today 5th November since finishing her treatment.  Just wondered what the next line of treatment would be when needed now that Rev and Pom have been taken away from people who need these drugs. Thanks for your earlier reply.

[pottermanParticipant]

Any info at all ?

[pottermanParticipant]

My partner had VCD from April 14 to Nov 14. Has been off all treatments since November apart from Oxycontin for pain and Zometa infusion once every four weeks. She has had  a Complete Response and Remission since then. Dont know exactly what we can have now at first relapse. An sct has never been mentioned as an option.  Dont know whats next. We are been seen at the Royal Stoke University Hospital in Stoke on Trent. We go for our three month review on the 18th September.  Any info would be very welcome.

[pottermanParticipant]

Promises,  promises, promises before they get in and then they back track. We need these drugs. They are proven to work no matter what the cost.

[Author]

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