Myeloma Forum | purday | Activity https://forum.myeloma.org.uk/members/purday/activity/ Activity feed for purday. Tue, 21 Apr 2026 14:45:43 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 dafde12bc18a49ef2953e4f1fea9ef8b purday replied to the topic Newly Diagnosed MGUS in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/newly-diagnosed-mgus/#post-135192 Tue, 26 Sep 2017 17:38:36 +0100 Hi Yvonne,

I cannot give any information on Smouldering compared to MGUS. Apart from this site I use Margaret’s Corner:

link: https://margaret.healthblogs.org/

This I have found really informative on MGUS & Smouldering, as well as this site.

Always here if you need a chat.

Rachel xx

 

 

 

 

 

]]> 77ee8efd77286ae520dae0e082ef33d8 purday replied to the topic Newly Diagnosed MGUS in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/newly-diagnosed-mgus/#post-135192 Tue, 26 Sep 2017 17:38:36 +0100 Hi Yvonne,

I cannot give any information on Smouldering compared MGUS, but what I do know it that people ‘Smoulder for years’. Just reading about  people Smouldering for 20 years plus. Apart from this site I use Margaret’s Corner:

link: https://margaret.healthblogs.org/

This I have found really informative on MGUS & Smouldering, as well as t…[Read more]

]]> 1deb9ce99383c9e7a4a36e257f928810 purday replied to the topic Newly Diagnosed MGUS in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/newly-diagnosed-mgus/#post-135156 Tue, 26 Sep 2017 08:24:47 +0100 Hi Yvonne,

Thanks for the info on flu jab, I think I’ll will have one.

I completely understand your nerves, but it will ease your mind when you speak with your Consultant.

I’ve decided to start and try and eat more carefully now with the stress recently I must admit I’ve not really been looking after myself, just concentrating on the children…[Read more]

]]> 7a621550e7ada51864474b09edc11c22 purday replied to the topic Newly Diagnosed MGUS in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/newly-diagnosed-mgus/#post-135153 Tue, 26 Sep 2017 07:15:56 +0100 Hi,

After my third lot of blood test (after 7 months), Dr has stated I officially have MGUS (paraprotein unchanged so far!) Though I must admit very nervous before the results, I will have to get use to this now!

Yvonne, all the best with your results.

Quick question to other MGUS sufferers, would you recommend Flu jab? I had a really bad chest…[Read more]

]]> 58f8ec5c9f0a54fce76a8458ffc3b3d1 purday replied to the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/petct-scan-shows-hot-spots-on-bone-marrow-and-igg-levels-rising/#post-134119 Mon, 03 Jul 2017 12:08:45 +0100 Hi Yvonne, sorry to hear that you have been getting these aches and pains. Yes its difficult not to get paranoid like you said about every pain you feel. MGUS is a very strange diagnosis to have and though the Dr’s say that you should not worry, its hard not to. Hope the Dr’s can get to the bottom of it for you.

All the best

Rachel

 

 

]]> 314cea2d2cf74fe2f81af895bba1a5a3 purday replied to the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/petct-scan-shows-hot-spots-on-bone-marrow-and-igg-levels-rising/#post-134076 Fri, 30 Jun 2017 08:26:52 +0100 Hi,

As you can see by my previous posts I still in the ‘learning stage!’ myself, but thought I would say hello. I’m sure that someone here can give you some more advice about your MGUS.

All the best

Rachel

]]> da80e7f1f2e256d4c7ba95f8931385e9 purday replied to the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/petct-scan-shows-hot-spots-on-bone-marrow-and-igg-levels-rising/#post-133767 Sun, 11 Jun 2017 14:53:02 +0100 Hi Vicki, thanks for the advice, I will take that on board. I’m waiting until September and see what my results are then, the Dr told me that I wont see a haematologist until something changes!  I’ve found Margarets Corner  (http://margaret.healthblogs.org/) very informative ( as well as this site). Especially the information about curcumin c3 c…[Read more]

]]> 568cdee658872b74e05047be80164b97 purday replied to the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/petct-scan-shows-hot-spots-on-bone-marrow-and-igg-levels-rising/#post-133747 Fri, 09 Jun 2017 18:20:19 +0100 Hi Vix66,

Sorry to hear what you are going through at the moment. I cannot give any advice as I am still very new here  (still not officially been been told I am MGUS ) awaiting my next blood tests in September. At present I’m IgG  Kappa paraprotein 3. I’m 46 so a similiar age to you, so sending lots of love. Hope you can find more information to…[Read more]

]]> d7d7091ffcba234f489c54e0e7ca3d0e purday replied to the topic Possible MGUS? Very scarred. in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-very-scarred/#post-133120 Fri, 21 Apr 2017 10:53:51 +0100 Dear Carolynne, firstly very sorry for not getting back to you sooner, but I’ve been away for Easter. Thank you so much for your story, I cannot tell you how much it has helped my state of mind and also to get everything into perspective. Many Thanks again, Rachel

]]> d5bc5b87b70d3a33c6804f9ffd73e940 purday replied to the topic Possible MGUS? Very scarred. in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-very-scarred/#post-132312 Thu, 16 Mar 2017 09:17:29 +0000 Hello Mike & Ted, thank you both for your messages and information. Yes I must get used to this waiting game ( im not very good at this). Its just a very strange disease and all the information and how it can vary is quite overwhelming. Thanks again. Rachel

]]> 604a622d459b28783e9db5333ab6b449 purday replied to the topic Possible MGUS? Very scarred. in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-very-scarred/#post-132246 Sun, 12 Mar 2017 10:08:36 +0000 Hi Julie,

Thank you so much for taking time to reply. As you stated keeping busy is good until I know more information (helped by the fact that one of the children has ended with the sickness bug so this has kept be  very busy on Saturday!) I really didnt want to bother anyone on the forum as people are dealing with alot more than I am. But o…[Read more]

]]> 3309128372a0f1b9bc63bc9afe32821b purday replied to the topic Possible MGUS? Very scarred. in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-very-scarred/#post-132230 Fri, 10 Mar 2017 20:11:46 +0000 Thank you Beetlejuice, for replying to my post. Thanks for your advice and information it really helps. I am hoping that with time I can be a bit braver. Thanks again for taking the time to reply. Rachel

]]> 2cd671de6c01f95efa26c3340f881ddc purday started the topic Possible MGUS? Very scarred. in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/possible-mgus-very-scarred/ Fri, 10 Mar 2017 12:21:53 +0000 Hi,

Just been told after lots of blood results I have a paraprotein level of 3, possible MGUS? All other bloods were ok (had lots of test done). Awaiting a Urine test back (normal one not 24 hours one). Receptionist will not give me back the results because GP not in, to sign them off until Monday!!! To be honest I am really struggling with…[Read more]

]]> 6598a4822435526b175411233b23af85 purday became a registered member https://forum.myeloma.org.uk/activity/p/48867/ Thu, 09 Mar 2017 09:22:10 +0000 0