[racheljParticipant]

Hi Jane,
I had my SCT in November. Ask if there is a fridge in the room so your husband can keep things such as smoothies or decent yoghurts etc. And a selection of snacks he likes. Plus some cutlery, plate, cup etc so he doesn’t have to keep buzzing for help if he wants to eat outside of meal times.
Take extra underwear and pyjamas and empty plastic bags so you can take them home in case if accidents. (Yuk, I know, but better to be prepared.)
My room was much hotter than expected so my husband had to keep bringing in and taking away my clothes! They advise you to get up, showered and dressed every day which is good mentally too.
Otherwise books, tablet preloaded with films etc, chargers etc
Other people had exercise gadgets to keep exercising in their rooms but with several collapsed vertebrae this didn’t apply to me. Although I know someone took in a step to do aerobics!
I hope it goes well for him and for you.
Rachel

[racheljParticipant]

When I was first on oral chemo I was told to take them at my evening meal so 6pm roughly. But always took steroids (dex) first thing in the morning.
R.

[racheljParticipant]

I had a stem cell transplant 7 weeks ago and am about to go on maintenance chemo. Prior to my transplant I was on lenalidomide (with ixamobib and dex) for 18 months. And other types of chemo before that.
I have been told my maintenance lenalidomide will be 3 weeks on and one off as all my chemo has been. I am waiting to hear what dose. Previously I was on 15mg (and 20mg before that).
One of the main effects was on my immune system (neutrophils and white blood cells) which is a key problem with lenalidomide. Hence going on a lower dose.
Because of Covid NICE have apparently relaxed some of the timings about receiving lenalidomide so you should check with your consultant if this impacts you (in England).
I always took lenalidomide about 6pm with no ill effects.
Good luck
Rachel

[Author]

Posts