chrisrangecroft

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  • #102110

    rangecroft
    Participant

    I think I am just lucky,I was diagnosed early with no bone damage,though my para protein level was 76! Only time I've really felt ill was during Chemotherapy in the early stages to get that down and ready for SCT. I was put on 25mg Revlamid 2 years ago after a 4 month break from treatment. I couldn't cope with that level. It made me so disorientated, but it did bring my para protein down from 34 to 15 and then slowly down to 7 once I went on 15 mg. It has crept back up to 14 the last twelve months but still okay according to my consultant. I eat well,lots of fruit,fish and not to much red meat. No side effects from Revlamid except the usual constipation and that has eased off now I've been on it so long. My energy levels aren't as high as they used to be but I'm getting older too! Chris

    #102107

    rangecroft
    Participant

    I'm now on cycle 23 with no major problems. 15 mg dose. I have cataracts,which could be a side effect or just age(Im 64). 4 years since diagnosis and in good health. Just come back from a two week cruise,fit for gardening and can walk a couple of miles no problem. I also take 20 mg demexathone once a week. Been through SCT,only worked for 9 months,then Velcade and now Revlamid.

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