Myeloma Forum | rayroth | Activity https://forum.myeloma.org.uk/members/rayroth/activity/ Activity feed for rayroth. Thu, 07 May 2026 10:39:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e384a0199c07c26e724d9b8283887722 rayroth changed their profile picture https://forum.myeloma.org.uk/activity/p/40200/ Tue, 04 Aug 2015 10:49:43 +0100 0 8e2b11342a90b5fd02f059ff89f124a1 rayroth replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-123479 Tue, 04 Aug 2015 10:41:36 +0100 Hi

Thanks for sharing. I now have an appointment for a heart biopsy on 21st August.  Unlike others I have not had a major event and have come to this point after significant heart wall thickening and a history of breathlessness.  It seems that it is heart only. I really appreciate the existence of this forum and will post from time to time. Go…[Read more]

]]> 69071fac3bedb567659d949a7256514d rayroth replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-123467 Mon, 03 Aug 2015 03:53:48 +0100 I come from “the land down under” and am currently being assessed by the PA Amyloidosis clinic in Brisbane.  After months of biopsies etc they are 95% sure I have Al type and it appears to be in the heart only.  I am waiting for the cardiologist to get me on to his list for a cardiac biopsy.  The processes are exceedingly slow.  I am nervous abo…[Read more]

]]> 779932da348f0cd84cba4ef6620b7daa rayroth became a registered member https://forum.myeloma.org.uk/activity/p/40183/ Mon, 03 Aug 2015 03:39:12 +0100 0