Myeloma Forum | MartinDeirdre | Activity https://forum.myeloma.org.uk/members/ready2fight/activity/ Activity feed for MartinDeirdre. Sat, 09 May 2026 17:19:43 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 576a5273d2d6bb6dfab79564d42ac9d9 MartinDeirdre replied to the topic All so confusing in the forum Carers http://www.myeloma.org.uk/forums/topic/all-so-confusing#post-106545 Sat, 17 Nov 2012 21:15:17 +0000 Its really nice to meet you all just wish it wasn't cause of MM! I will ring on Monday for a MM diary. I am just cross that we haven't been informed in 2009 that there was Bence Jones protein in his urine, at least we would ve expected all the last 2 week's drama with his kidneys. He was so poorly he didn't know what was happening to him, he…[Read more]

]]> 46bfcde81e4457cd2bec0bdece5473c7 MartinDeirdre replied to the topic All so confusing in the forum Carers http://www.myeloma.org.uk/forums/topic/all-so-confusing#post-106543 Sat, 17 Nov 2012 20:10:56 +0000 Hi Eve,
Thank you for replying :-). According to the consultant at the hospital in Swansea, Cyril has had Bence Jones protein in his urine since 2009 (we were only told last Dec 2011) about it, Somewhere we've haven't been told he had MM in 2009 and he has been left for 2 years without monitoring or treatment :-S He only had Zometa every month…[Read more]

]]> e75fe8dfdd1c5d13910f0f89fcf1f7e4 MartinDeirdre replied to the topic I feel so angry, frustrated, fed up...blar blar blar..... in the forum Carers http://www.myeloma.org.uk/forums/topic/i-feel-so-angry-frustrated-fed-upblar-blar-blar#post-106513 Tue, 13 Nov 2012 19:58:10 +0000 so glad i read your post, I m similar situation, my daughter Tracey is 16, got the pets, business and most importantly Cyril my husband to care for. My parents live sin South Africa and the times I ve tried to speak to my mum we both just got so emotional so know I do the pretend I am ok all the time. But deep inside I am so scared…. A few…[Read more]

]]> 49d94e92f34440cf9caf04c30bc3cdac MartinDeirdre started the topic All so confusing. in the forum Carers http://www.myeloma.org.uk/forums/topic/all-so-confusing Tue, 13 Nov 2012 19:49:05 +0000 My husband is diagnosed a few days before Xmas last year with MM. Reading all the different scenarios about treatments etc, on the website, I feel really if everyone is speaking a language I dont know about! How many different counts are being monitored?? I know about the haemoglobin count and kidney function thats about it.

He was really…[Read more]

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