Thanks Alison, No I am not seeing a kidney specialist – i have asked but my consultant says i don't need to as he is in contact with him – I feel my sct is a fait complet with my consultant who sees it as the best way forward due to age (52) and maybe's he's right and its just fear clouding my judgement about it – my kidneys at 240 creatnine and…[Read more]

Thanks for that, comforting to know – at the moment I don't know what to worry over the most kidneys or myeloma! my consultant is very pro SCT and talks as though there is no option or decision to make I will have sct because i am entitled to it due to age.

Thanks for that my creatnine is arouund 200 but the urea is high at 14.1 – so for you the SCT did not further damage kidneys at all? did you have dialysis whilst being SCTd where i am going for SCT they don't have a renal unit so they are going to keep shipping me off for dialysis in the process – am worried when S & D kicks in! CAn you tell me as…[Read more]

Thanks for that, ther has been no mention yet me seeing a kidny specialist but as I am only 16% wonder if I should be following a kidney diet etc to presere what's left? have you had to follow a different diet etc?

Thanks Phil – did the kidneys contine to recover after the 5 courses or was recovery within that – I've been told any recovery is usually within 3 – 4 months only?