Myeloma Forum | reedhamman | Activity https://forum.myeloma.org.uk/members/reedhamman/activity/ Activity feed for reedhamman. Sun, 19 Apr 2026 07:16:21 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 58b2643f7539b20db854c7f853f4599d reedhamman replied to the topic multiple fractures... in the forum Newcomers https://www.myeloma.org.uk/forums/topic/multiple-fractures/#post-137897 Wed, 09 May 2018 22:49:37 +0100 Four years ago I was diagnosed with Myeloma. My spine collapsed and I lost a few inched in height, which left me in pretty bad pain and I had to sleep in a special chair for about six weeks. Could not get into bed. Could hardly eat, I was thin as a rake.

There is really no light at the end of the tunnel, my body will never be right again but…[Read more]

]]> f823a656c052dbbdcdf9b7488cd0d293 reedhamman replied to the topic Height loss causing severe discomfort in the forum Newcomers https://www.myeloma.org.uk/forums/topic/height-loss-causing-severe-discomfort/#post-136546 Sun, 31 Dec 2017 22:17:52 +0000 Hello

I had collapsed vertebra which has caused me to to lose about two inches in height. I am rather bent over and do not look very nice on the beach.

My back is somewhat painful but not as bad as it was. The bone doctor said an operation could improve my back but that it would be better just to cope with it as it is. At my age I do not like…[Read more]

]]> d42286070334554250be2351af0cd786 reedhamman replied to the topic Daratumumab, Carfilzomib, Panobinistat in the forum Treatment https://www.myeloma.org.uk/forums/topic/daratumumab-carfilzomib-panobinistat/#post-135875 Thu, 09 Nov 2017 20:08:25 +0000 You can ask your GP to refer you to another doctor for a second opinion if you think that your present consultant is missing some treatment choices for your husband.

I am taking my third batch of treatment options now and I am doing quite well. When this fails, as it surely will some day, I will be faced with a choice of more intense treatment…[Read more]

]]> 2e5f44081748afa273501ccd4068b569 reedhamman replied to the topic Remmision hubby in partional in the forum General https://www.myeloma.org.uk/forums/topic/remmision-hubby-in-partional/#post-135692 Wed, 25 Oct 2017 20:28:17 +0100 I take rivaroxaban pills each day to thin the blood.

No need for injections.

John

]]> a4e608ac15e3613834703c278a5d055c reedhamman replied to the topic Remmision hubby in partional in the forum General https://www.myeloma.org.uk/forums/topic/remmision-hubby-in-partional/#post-135636 Fri, 20 Oct 2017 10:39:08 +0100 After treatment my paraprotein went down to 2. That was very good and then after about 6 months of remission it slowly climbed to 15 and it was then decided that it is best to re-start treatment. So my paraprotein is now down to 9. I am taking lenalidomide with dexamethazone, hardly any side effects.

I think that the doctor thought that anything…[Read more]

]]> 16da7385b77ef3a0aa4b8ff197c7164f reedhamman replied to the topic Maintenance alternative to a first SCT in the forum Treatment https://www.myeloma.org.uk/forums/topic/maintenance-alternative-to-a-first-sct/#post-135520 Mon, 16 Oct 2017 12:10:45 +0100 I decided against SCT two years ago because I was feeling very weak with side effects of Velcade. I then went on to Cyclophosphamide and Dexamethazone which held me for a while and now I am taking Revlimid with Dexamethazone.

It is just maintenance but has brought my paraproteins down from 14 to 9 over the last 5 months. No serious side…[Read more]

]]> ea03d2cdd85669f9dfa4a359b73c32f0 reedhamman replied to the topic Possible transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/possible-transplant/#post-121974 Tue, 28 Apr 2015 15:34:49 +0100 Thanks for these comments. I will need to make a decision by next week.

John

]]> 53e1b6a975f089c527ec4cd69044e8ca reedhamman changed their profile picture https://forum.myeloma.org.uk/activity/p/38747/ Sun, 26 Apr 2015 19:49:34 +0100 0 7ad52c72479fb9f06e155997396af2c3 reedhamman replied to the topic Possible transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/possible-transplant/#post-121915 Sun, 26 Apr 2015 19:40:19 +0100 I am aged 66, older than is ideal but the doc thinks I am pretty fit. I still feel rather sickly from the velcade treatment that has just ended.

I don’t want to go on forever feeling sick.

Most people here seem to have had on balance a positive experience of a transplant. Anyway it is quite nice having nurses fussing and looking after me,…[Read more]

]]> 8771dbdf0877c7ddf71c8aa5b8d92960 reedhamman started the topic Possible transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/possible-transplant/ Sat, 25 Apr 2015 16:37:05 +0100 I started treatment six months ago with velcade and dexamethazone, my paraprotein level has gone down from 60 to about 10. It is plateauing at 10. Partial remission.

The doctor suggests I go for a stem cell transplant.

It is not an easy option because it means intensive treatment then some months to recover. I am not looking forward to it. The…[Read more]

]]> eeeae53b827230982846b229586ac83a reedhamman started the topic Getting better for now. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/getting-better-for-now/ Wed, 03 Dec 2014 21:28:23 +0000 Hello

I was diagnosed last October.

Kidney failure led to the diagnosis.

Since then I have had three courses of velcade and my paraprotein has gone down from 56 to 35 to 23 now. So that is going in the right direction. I am very short of breath but other-wise OK. I think I will be around for some time yet.

I will buy a large size LCD TV after…[Read more]

]]> dafd54d7fdbafcbd4028848b7cb2f707 reedhamman became a registered member https://forum.myeloma.org.uk/activity/p/36663/ Sun, 30 Nov 2014 22:37:06 +0000 0