richardlong posted an update 9 years, 2 months ago
Hi
I have just had my first cycle of bendamustine last Tuesday and Wednesday. So far feeling not too bad. Sleeping better on prednisolone than Dex. Have exhausted other treatments, 2 scts, velcade, thalidomide, pad and revlimid twice. Here’s hoping
richardlong replied to the topic Supposed to have started 2nd chemo today. in the forum Under 50s 10 years, 11 months ago
Richard I have just been started yesterday on PAD from Revlimid as after 5months of treatment, during which time my paratrotein level went up instead of down. Hoping I have better luck with this treatment.
Im grateful at minute that at least they are giving me something. Feel a bit sorry for the consultant when he has to apply for funding for…[Read more]
richardlong replied to the topic Another hospital visit in the forum Under 50s 11 years ago
Hi dickB,
Thanks for replying. Well take it from me there are definitely more treatments available for you already and my doctors tell me there are currently trials being done in UK for 2 more treatments.
My doctor always says "your're not a statistic, and statistics are only for doctors prescribing treatment".
4years ago i didnt really know…[Read more]
richardlong replied to the topic Another hospital visit in the forum Under 50s 11 years ago
Hi David,
Thanks for replying. I was on velcade for I think 8 cycles, although some weeks i only got it once instead of twice a week, due to tingling in hands and feet, colds, etc. My paraprotein started to rise after only a month off velcade and I went on revlimid after another 5months. Strangely doctors told me most people manage revlimid…[Read more]
richardlong started the topic Another hospital visit. in the forum Under 50s 11 years ago
Hi I'm new to this forum. I was diagnosed in sept 09 and since have had thalidomide, SCT(which gave me 1yr remission), velcade and now I'm on my fourth cycle of revlimid. Surprisingly this has been the first time i have felt unwell with low blood counts, fatigue, nosebleeds, headaches and bone pain. Just came from the hospital today and they said…[Read more]
richardlong replied to the topic Bad side effects on Revlimid/Dexamethasone in the forum Side-effects 11 years ago
Hi, I have had MM since Sept 09, After thalidomide, SCT and Velcade, I am now on 4th cycle of revlimid. This has been my toughest one yet. My bloods are very low and i have back and chest pain. I really feel i have no choice but to struggle on as funding has been supplied for this treatment. I feel knocked back a bit as i sailed through the other…[Read more]