richfs posted an update 1 year, 11 months ago
Hi, I’m one of the peer volunteers on the Myeloma UK Discussion Forum. I was diagnosed with myeloma in 2019 and treated with VTD and a Stem Cell Transplant. I was in very good remission for a year, then the paraprotein level started rising, and in 2022 (3½ years after starting my initial treatment) I started a second-line treatment of 24 weeks of…[Read more]
davidw and richfs are now friends 2 years, 7 months ago
richfs posted a new activity comment 2 years, 8 months ago
Good morning Rich.
Thanks again for your reply much appreciated.
Consultant is very happy with my progress everything is going in the right direction which is great news I’m just waiting for his letter to come through with all of the results from my bloods.
Consultant is contacting the doctor who will be dealing with my stem cell…[Read more]
richfs posted a new activity comment 2 years, 8 months ago
Myeloma UK have some videos about the SCT process –
https://www.myeloma.org.uk/videos/high-dose-therapy-and-autologous-stem-cell-transplantation/
richfs posted a new activity comment 2 years, 8 months ago
Thanks for your message Peter, I’m really glad that you’re getting on so well with the induction treatment. Our mantra was very much “one day at a time”, but it’s good to plan and think ahead to a future of good health. How did you get on with your doctor today? Did you get any blood results? I expect you’re still a good few weeks away from the…[Read more]
richfs posted a new activity comment 2 years, 8 months ago
Hi Peter,
Sorry to hear about your diagnosis, it is such a shock to be given this.
Myeloma UK have just trained some peer-volunteers to assist on this forum. I am one such person and was treated for myeloma in 2019 with VTD and a stem cell transplant.
Do let me know if you’d like any advice or support, we’re here for you 👍
Rich.
Good morning Rich.
Sorry for the late reply thanks again for your messages. My treatment has been going great 🤞 Tuesday will be the start of my 5th cycle so far I have 8 more cycles to go then stem cell treatment. Hopefully I will find out on Monday when I have my 1 to 1 with my doctor. I must admit the doctor reduced my steroids last week from 20…[Read more]
Thanks for your message Peter, I’m really glad that you’re getting on so well with the induction treatment. Our mantra was very much “one day at a time”, but it’s good to plan and think ahead to a future of good health. How did you get on with your doctor today? Did you get any blood results? I expect you’re still a good few weeks away from the…[Read more]
Myeloma UK have some videos about the SCT process –
https://www.myeloma.org.uk/videos/high-dose-therapy-and-autologous-stem-cell-transplantation/
And an info sheet –
Good morning Rich.
Thanks again for your reply much appreciated.
Consultant is very happy with my progress everything is going in the right direction which is great news I’m just waiting for his letter to come through with all of the results from my bloods.
Consultant is contacting the doctor who will be dealing with my stem cell…[Read more]
richfs changed their profile picture 2 years, 8 months ago
richfs became a registered member 2 years, 9 months ago
