RobertR

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  • #107071

    robbierankin
    Participant

    25/1/13. It begins….
    Got the central line fitted and am still trying to get used to it. Treatment has started and I have a 'pump' connected to the line sending Doxorubicin into me continuously for 4 days. (Feel like I'm turning into a 'Borg' – any star trek fans out there ???)
    As it's only day 2 I imagine the fabled side effects are still due to hit but the Dexamethasone steroid effect is VERY noticeable. Feel like I'm flying sometimes. Needs a lot of concentration to stay level.
    Anyway for those who've had an infusion pump fitted to their central line, what was your experience of it ? (if you don't mind sharing).
    Many Thanks and blessings.
    Rob.

    #107068

    robbierankin
    Participant

    Hello Eve;

    Many thanks for your words of welcome.
    St. Georges is my local hospital and they don't do the MyelomaIX trial there.
    Looks like the PADIMAC trial will be the only viable option.
    Just trying to get my mind round the idea of a tube (Central Line) sticking out of me for several months.
    Thanks again.
    Bless,
    Rob.

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