Hello Maureen,

Don’t know if orangelily has responded however, I have found this in Amazon/Kindle which may be the book that is being referred to. Please see below for the…[Read more]

Hi Karen,

I can certainly relate to the increased anxiousness as you get closer to that 6 week/8 week blood test. Sleepless nights a week before the test in conjunction with being a bit of a grouch – so my wife tells me!  I saw another consultant last Monday at my local hospital who asked me how I was? I responded that I had actually come to t…[Read more]

Morning Tony,

Can you post a copy of the article?

Regards,

Robert

Hello Helen,

A warm welcome to the forum.

May I ask exactly what supplements you are taking or, thinking of taking?

Regards,

Robert

Hi Rhiannon,

I am 62 years old and was only diagnosed some 4 months ago. I had a MRI scan for a long standing back problem which by the way, was totally separate to the Myeloma which they actually found during the scan, so a real shock. As I have said, I do however, consider myself one of the lucky ones as I am still at the smouldering stage but…[Read more]

Hi Mavis,

As promised, now that I am back in the UK I thought I would update you following my last post.

I have only been diagnosed with Myeloma for around 4 months which is currently at the smouldering stage and was found quite by chance, so I consider myself lucky in one way, but very unlucky in another…

I am trying very hard to stay at the…[Read more]

Hi Rhiannon,

After reading your comments, my heart goes out to you and at such a young age, you should not be facing the situation with your father and his illness. Myeloma like any other cancer, knows no boundaries.

I too am a MM sufferer but at the moment, I am still at the smouldering stage and trying to do what I can to stay there. I have…[Read more]

Hi Mavis,

I am out of the UK at the moment on holiday however, I will drop you a more detailed note when I return as I have some additional material which I will send to you as a reference.

By the way, the weather in Gran Canaria is fantastic and just what the doctor ordered…

Hi Mel,

A warm welcome.

i was diagnosed with smouldering myeloma around 3 months ago and am currently on a watch and wait programme but am trying to do want ever I can to remain at this level. I guess only time will tell here.

As part of my diagnosis I also had blood tests, MRI scan, skeletal scan and then a bone marrow biopsy where the doctor…[Read more]

Morning Brian,

Welcome to this awful club, as I too have just been diagnosed with smouldering Myeloma.

It is interesting to hear that you are on a course of bisphosphonates infusions which I must admit, I am somewhat ignorant of however, thanks to Google I now know they are related to bone and calcium issues.

Do you know your calcium levels an…[Read more]

Hello Again,

Just been on the nowicantravel.co.uk web site where I was surprised to see they actually had “Smouldering Myeloma” listed in their pull down menu options, which is the first travel insurance web site to have this. They agreed to cover my wife and I to include my condition, for 2 weeks in the Canaries, for £43.72 so decided to take th…[Read more]

Hi Everyone,

Many thanks to all those who have sent me their thoughts. I agree that it’s a matter of risk but as I am in the very early stages of smouldering Myeloma, may still do this however, I am conscious that insurance companies will always try to wriggle out of anything that they can.

I will most certainly take a look at…[Read more]

Hi Robbo,

I have only had one bone marrow aspiration so far which for me, is quite enough.

I had a local anaesthetic but once the doctor started to bore into my hip, it literally felt like a hot needle so I had another couple of shots of whatever it was they were pumping into me. This was fine until they then started to enter the hip bone which…[Read more]

Hello Tom,

Thanks again for the comments and feedback. I must admit that I had never heard of POMI-T it but then again, prior to around 2 months ago I would not have had any reason to look, but now is a slightly different matter.

I am pretty happy with my current supplement regimen and will stick with this at present, as I’m getting the majority…[Read more]

Hi Tom,

Good to hear that your consultant said taking it, will probably not do any harm.

May I ask what dosage of curcumin you currently take?

Regards,

Robert

Hello David,

Thanks for your positive comments and may I say that I admire the manner in which you are managing your issue by taking one day at a time and not thinking too far ahead.

Wishing you continued good luck.

Regards,

Robert

Hi,

I cannot really comment on the issues of side effects, as my current “smouldering” position is just watch and wait however, if you are not happy with anything, then suggest you contact you husband’s myeloma nurse specialist at your myeloma clinic or, or seek further advice from your GP.  Also, don’t be afraid to ask questions so you can u…[Read more]

Jeff/Scott,

Thanks again for the feedback.

I have already read with interest the story of TAB who seems to have had great success with Curcumin, but appreciate that although this seems to have worked for him, it may not work for others as Myeloma seems to be so individual.

Anyway, thanks once again.

Regards,

Robert