thankyou all the the messages!
The latest update for us seems to be a "plasma Wash out" whatever that is… currently they are now struggling to get his blood to clot, all normal cotting agents aren't working. they've sent some blood off for analysis at a centre.
He's currently in Brighton Hospital and although the team have been fantastic support for him I know he's struggling a bit with the food etc.. we've started taking in his meals.
the Consultants have now decided to go back to square one and review ALL his history to try and understand if something else has been missed along the way.
thanks again for the support!