I started with MGUS a few years ago which was confirmed Myeloma in Feb 23. I am lucky in having no real symptoms before diagnosis.
I agreed to the RADAR trial and has been a positive in may respects. Access to more drugs, closer monitoring and contributing to research which will hopefully benefit others.
The induction went well and reduced my paraproteins to a very low level, Dexamethzone and the effect of steroids was the only challenge, hyper and not able to sleep. SCT in October 23 in Clatterbridge in Liverpool. I cannot speak highly enough about the standard of care. 28 days in hospital as fighting an infection. The 100 days post SCT went well then back to Chester. Another fantastic haematology department.
I am just starting cycle 10 of my maintenance treatment. I was randomised to lenalidomide 21 days the 7 day break. Probably the easiest treatment life style wise as all tablets. No significant side effects so far and paraproteins stable. Long may it stay that way.
I have to say my experience has been thinking about what is coming has been harder than the reality of the treatment. The best advice I can give is that given to me, stay as healthy as you can with exercise and diet it will put you in a good position
