ronnie17 replied to the topic Any experiences of 2nd Stem cell transplant in the forum Treatment 12 years, 2 months ago
Hi Tom
I had SCT 28th dec so still fairly new. When did you have yours and are you still in remission
ronnie17 replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years, 6 months ago
Hi Colin and Vicky
I am starting my SCT on 4th dec just wondering how you are doing now.
Nerves are kicking in a bit as I had a lot of side effect on the 4 cycles. If you would not mind would really appreciate an update from you. Good luck on ye recovery.
Regards Veronica x
ronnie17 replied to the topic Worst week ever in the forum Side-effects 12 years, 9 months ago
hi keith
I can only buit sympathise I also have had rough few days and this is only my 10th day of treatment. Had quite a few side effects along with contstipation chronic back pain and my head feels like it is on fire. I just hope and pray that I only have to have the minumum course of treatments before stem cell transplant. God give me strength.
ronnie17 replied to the topic Smouldering myeloma in the forum Newcomers 12 years, 10 months ago
hi beverly
I was told that I have asymtomatic myeloma. Although just recently confirmed that this is this I beleive I have had this since 2009. What concerns me mmost is that I beleive that the Haemotologist has got it all wrong and that I am symptomatice as I am anaemic have raised protein levels and raised plasma cells and severe bone pain…[Read more]
ronnie17 replied to the topic Smouldering myeloma in the forum Newcomers 12 years, 10 months ago
hi everly
I have had a mri scan and bone skeletal. the bone skeletal did not show anything, but the mri show compression in lower back and I also had a fracture on my T5. /The haemo said that this has nothing to do with the myeloma but i disagree. My back and rib pain has become increasing more painful and this all come about since 2009 to…[Read more]
ronnie17 replied to the topic Smouldering myeloma in the forum Newcomers 12 years, 10 months ago
hi I am 56 and have just been diagnosed with asymptomatic myeloma. It was only in march when they said it was MGUS. I had to insit on having a bone marrow biopsy and after having this was diagnosed. My plasma cells are 15% and my paraprotein is 15 but this keeps on incrasing 1% a month, The haemotologist said that as my calcium level is normal…[Read more]