[ronnie17Participant]

Hi Tom
I had SCT 28th dec so still fairly new. When did you have yours and are you still in remission

[ronnie17Participant]

Hi Colin and Vicky
I am starting my SCT on 4th dec just wondering how you are doing now.
Nerves are kicking in a bit as I had a lot of side effect on the 4 cycles. If you would not mind would really appreciate an update from you. Good luck on ye recovery.

Regards Veronica x

[ronnie17Participant]

hi keith
I can only buit sympathise I also have had rough few days and this is only my 10th day of treatment. Had quite a few side effects along with contstipation chronic back pain and my head feels like it is on fire. I just hope and pray that I only have to have the minumum course of treatments before stem cell transplant. God give me strength.

[ronnie17Participant]

hi beverly

I was told that I have asymtomatic myeloma. Although just recently confirmed that this is this I beleive I have had this since 2009. What concerns me mmost is that I beleive that the Haemotologist has got it all wrong and that I am symptomatice as I am anaemic have raised protein levels and raised plasma cells and severe bone pain in my ribs, back and down my right leg. I am going for a second oepinion at the royal Marsden Hospital this thursday so hope that they listen to me a little more.

[ronnie17Participant]

hi everly

I have had a mri scan and bone skeletal. the bone skeletal did not show anything, but the mri show compression in lower back and I also had a fracture on my T5. /The haemo said that this has nothing to do with the myeloma but i disagree. My back and rib pain has become increasing more painful and this all come about since 2009 to which I believe is when the hospital found para protein in my blood but did not advise me of this. It is only that I kept going back to my Gp with constant infections and more back pain to which they said was fibramalagia. my pain is getting really unbearable now and I am constantly on pain killers but they are still saying not myeloma. I have a CT scan on the 7th of August so just waiting for the outcome of this.

[ronnie17Participant]

hi I am 56 and have just been diagnosed with asymptomatic myeloma. It was only in march when they said it was MGUS. I had to insit on having a bone marrow biopsy and after having this was diagnosed. My plasma cells are 15% and my paraprotein is 15 but this keeps on incrasing 1% a month, The haemotologist said that as my calcium level is normal and that I am only border line anemic then I do not need treatment although she has put me on Bonefos. What concerns me is that I have had severe pain in my back a ribs since last year but she is still insisting that this has nothing to do with the myloma, but I disagree as I had this before I knew anything about MGUS or myeloma. I also have had a lot of infections and have b12 defficiency which i have to have injections for every month. Has anyone else had problems like this

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