Thanks Jill for taking the time to email me.  My sted dad did have a turn on taking dex in January and he felt really unwell and very down so he stopped taking the third dose and when he went in Jan told doc what he had done and at this point his protein was 21. They halved his dose and he started them again and seemed ok and when we went last…[Read more]

Thanks Graeme for the reply.  His consultant was trying to be diplomatic and say this to dad.  I think the consent form put him off as so far he hasn’t had to sign anything so when he saw the side effects for thalidomide on there and the cycophosamide it worried him as he didn’t want his quality of life to go down from how it is now.  We go ag…[Read more]