Thank you both for you replies which are much appreciated
Sue – was the 6 months what you expected at the outset and if not too intrusive did you start out at stage ISS stage 1 and were you on Lenalidomide as one of the chemo drugs. I have a collapsed vertebrae as well and interested if you had any specific treatment for that. Thank you so much for the help, very much appreciated and as you say overwhelming initially but now getting on top of some of these tail which is helpful