Rosie 1961

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Viewing 14 posts - 16 through 29 (of 29 total)
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  • #120991

    rosie1961
    Participant

    Oh no-what an absolute pain!!!  I hope you can soon get the test done.

    R x

    #120975

    rosie1961
    Participant

    Hi Helen, hope everything goes ok for you today. I saw the haemotologist. She sent me for full skeletal x rays. She will review those with my bloods/MRIs with her team next week. I see her again on 10 March.

    #120825

    rosie1961
    Participant

    The GP surgery called today. They have checked the bloods ordered by the haemotologist. The only one that was highlighted as abnormal was the spep, showing the same result as before – small monoclonal band. It’s a relief that the tests did not show anything else.

     

    Will see what haemotologist says on 25th and wait for MRI.

     

    My leg is still cold at times and both legs have started burning in the night, waking me up. All strange!

     

     

     

    #120692

    rosie1961
    Participant

    Hi Eva, have you had your thyroid and B12 checked as both of these affected me quite badly (especially when I was hyperthyroid)

    #120687

    rosie1961
    Participant

    Is it worth asking your GP to run the Bence Jones urine test while you wait to see the haemotologist?

    #120685

    rosie1961
    Participant

    Hi Eva, I’m afraid I can’t answer your question about the bloods. But I understand your frustrations. It sounds like you have been waiting for answers a long time whilst feeling so ill.

    My dad has myeloma and I have been getting random symptoms for a few months. Apart from feeling tired I don’t have any major symptoms but it’s still hard to deal with all the questions.

    I really hope you get answers quickly . Thinking of you.

     

     

    #120668

    rosie1961
    Participant

    Unfortunately some medics just see people as pieces of meat. I also think when they can’t cure it they just don’t know what to say. Horrendous for that poor guy.

    I recently had head/neck MRI as they were concerned about the tingling in my arms and hands. Although ordered by nhs it was at a very local private clinic. I was more scared of the result than being in the machine! It was all clear – a big relief.

    I’m sure the puppies keep you busy!

    #120666

    rosie1961
    Participant

    Hi Helen, hope the new consultant has better people skills. These things are so important. Will definitely be thinking of you on 25th Feb.

    Saw my GP yesterday evening and she is sending me for a lower spine MRI to see if anything there is causing the cold leg. It’s a mystery!

    #120655

    rosie1961
    Participant

    I have my haemotologist appt on 25 Feb. They have requested bloods before that, spep, igs and b2m, so at least I know they are being thorough.

    The B12 jabs seem to have stopped the tingling but I’m still getting one cold leg at night, with some other random  cold patches!

    #120410

    rosie1961
    Participant

    I finally got the Bence Jones result today, it was normal 🙂

    I also had a private SFLC assay that was also within normal range. The GP is referring me to the heamotologist so I will be able to discuss the implications of the original blood test that showed the monoclonal band.

     

    #120230

    rosie1961
    Participant

    Thanks so much for your support 🙂

    #120188

    rosie1961
    Participant

    Hi, MRI is all done. The results will be sent to the hospital in 4-5 days.

    Just had a call from GP about the bence jones test. Apparently the hospital lab has run out of the necessary agent and they won’t have more until the end of next week. That is not good!!

    #120159

    rosie1961
    Participant

    Thanks C and K for your reassurance. I have an MRI of head/neck on Wed as I have no bone pain but have been getting some random tingling (possibly due to my B12 deficiency) and my other strange symptom

    which is one cold leg, mainly in the morning! At least it is all being investigated.

     

    #120154

    rosie1961
    Participant

    Hi Keith

    Thanks for asking. Yes I saw the GP. No real answers, she played down the result of the blood test. Urine test result not back.

    She  said she will refer me to haematology so they can review all results together, so more waiting. I suspect I may be asked to repeat the urine test but we will see!

    I feel a bit calmer and know I just have to be patient.

Viewing 14 posts - 16 through 29 (of 29 total)