Hi magic 30
So very sorry that you have also lost your husband so young and so suddenly, what a terribly hard journey we have begun. Things just seem to get harder, but I guess that’s to be expected. My kids are finding things tough too my 8 year old bottles every thing up and my 18 and 19 year old are just running from it. The others talk about…[Read more]

Thanks Sandra the photo was taken last summer it’s just over an hours drive away from us. We use to go there when we where dating so it was lovely that chris was well enough that day to take a stroll and reminisce. We are talking about chris a lot to the wee one, but it isn’t helping that we have been out of our home since the week after chris…[Read more]

Thanks guys for your support I’ve attached a photo of chris taken at the glens of Antrim in ireland. Blessings to all.

Hi Ian,
My husband is in hospital at moment too. He’s got an infection but has been told his kidney and calcium levels are high and is on a Iv drip to help flush them out. His light chain levels have been rising over the last few months but has doubled this month to 700. He’s been put back on dex to try to slow things down ( he had a hard time on…[Read more]

My husband Chris is not long out of hospital with chicken pox he was in a bad way he couldn’t even make it to the front door to try and get to hospital. He ended up going by ambulance. His pulse was very high and his blood pressure low. Can’t remember all his blood counts but I know his platelets where 24. It turned out he had pneumonia (a…[Read more]

Sorry meant radiotherapy, shows where my heads at at the moment 🙂

Just a quick update, we were at the hospital for his routine appointment today and the consultant is sending Chris for some radiation treatment on his back. I asked how come there are new deposits even though levels are still quite low. He suggested that they will probably increase in the next while. So I guess it’s wait and see.
Thanks again…[Read more]

Hi David the consultant told us it was free after 24 months he’s on cycle 25 now so I guess it must be free now. Chris’s light chains went as low as 29 they started to increase about 7 months ago so they added cyclophosphamide into the mix which seemed to do the trick, but they have started to increase again, they are just over 100 now. No one has…[Read more]

Jeff, I am so very sorry that you have to cope with this alone, you must miss your beautiful wife so very much. Especially now your coping with your own condition as well as your daughters illness. My heart goes out to you and i hope you have people around you for some support. I know how difficult it is trying to cope with so much going on. Your…[Read more]

Thanks for your feedback. Chris levels have been very slowly rising over the last few months but I don’t think the doctor is thinking of changing his treatment just yet. We are seeing him on Thursday so can ask questions then. I feel more reassured knowing this is normal for mm patients, even with low levels. I think seeing him in so much pain…[Read more]

My husband struggled with the side-effects of the dex and like Sarah’s husband was put on prednisolone. He takes 10 mg every day so doesn’t have the ups and downs that he experienced with the Dex and seems to cope with it much better. Perhaps you could ask your doctor if prednisolone could be an option. Best wishes Rosie