Thank you Patsyann / Maureen.

My other half is not big on pills so currently isn’t taking any medication for his back, but feels that something is wrong (though refusing to go to A&E) The situation we are in is that he is being treated by two different hospitals, one for the MM and one for the back, the back specialist is meant to be one of the…[Read more]

Thanks Taff,

But I’m now worried that we are basically being told that’s that, live with the pain – he was diagnosed with something called hyper-movement he’s more flexible than most ppl which i guess is one of the reasons his back hasn’t caved in just yet, and why the restraints of the brace are hurting him so much, but if this is it at 39 and…[Read more]

Helen – <span style=”font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif; font-size: 13px;”>NICE have said no to Carfilzomib</span><span style=”font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif; font-size: 13px;”> </span>

My significant other is on a Carfilzomib trial (…[Read more]

Thanks Mick, that is definitely one way to look at it, this week was much better compared to the previous two weeks of chemo, this i am sure will calm down I just cant wait to get back to some form or normality.

Sab’s x

Thank you everyone,  I guess the biggest issues to date for someone like me is the not knowing, everyone is individual and there is nothing standard about how someone will react to the treatments given or for how long. We had false hope in the early days whereby they turned around and said that there was a 40% possibility that it was Plasmacytoma…[Read more]

Hi Dawn,

He is being treated at the UCLH (Guess we couldn’t ask for a better place) while they have 10+ trials going on his in on the Cardamon Trial (Carfilomib) – Chemo Twice a week (IV line – Wed & Thu) third week today. It consists of 4 monthly cycles  3 weeks chemo / 1 week off after the 4th cycle i believe he gets a month off and they…[Read more]