sallylewis1

  • Sounds great Adrian….every bit we can all do is really great.
    Hope the SCT goes well for you – Take it easy afterwards, listen to your body and don’t overdo it! Fundraising can all wait 🙂

    Deb x

  • Debs changed their profile picture 8 years ago

  • I just wanted to let everyone know about an event that I am running in a couple of weeks – it would be fantastic if some of you might like to attend!

    The Perfect Pair is a wine tasting event with a difference…and we hope that you or your friends/ business colleagues might want to get involved. The event is being run by me, Deb Gascoyne, and I’m a…[Read more]

  • Thanks Chris. Sounds familiar. I too was reduced to 5mg after about 3 years or so.

     

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    Is anyone else suffering from neutropenia after long term Revlamid use?

    I have been on Revlamid maintenance therapy since my SCT 4 years ago. It’s been great, no sign of the myeloma returning but it’s beginning to take its toll. A few weeks ago I had to stop treatment due to a very low neutrophil blood count. And it’s showing no sign of…[Read more]

  • No, we don’t have one for North Yorkshire. I produce a monthly e-newsletter and reminder of up-coming meeting but most of the group don’t use email let alone Facebook.

  • Hi everyone. I haven’t been on this site for a long time now (more of a fb person), but I have been asked to let people know that sadly Sandra Lodwick, an old-timer (at only 50) on this site, sadly passed away yesterday.
    Sandra, passed away peacefully last night and Bruce, her husband has asked me to let people know. Sandra was positive in her…[Read more]

  • Hoping that some of you might think about helping me out? I know my fundraising posts are often passed on here, but I’m not asking for money…just support!

    I got diagnosed in 2009 with myeloma and am lucky to be 3 years in remission post SCT.
    To celebrate I am using my 40th year to raise awareness and money for Myeloma UK by doing a ’40 C…[Read more]

  • Hi David. THat is not good news. Although Maureen is right that revlimid has been said to have a tiny chance of increasing the risk of secondary cancer, skin cancer being one of the ones that it is more likely to do this with. That said, I have always said that whilst there is a chance of that, I’ll take that chance given the benefits it offers.…[Read more]

  • Some of you may know that I am aiming to complete 40 Challenges before I am 40….and Challenge 38 is to get 40 people to conga through West Wycombe Park, a beautiful National Trust property in Buckinghamshire. Please come along and support the event, and come and see me on the stall I will have in the Main Marquee too 🙂 To find out more about m…[Read more]

  • Debs started the topic Can you help? in the forum Off topic 10 years, 11 months ago

    I haven’t been on here for a while so I hope that people will still think about helping.

    I decided this year to do 40 Challenges B4 40 to raise money for Myeloma UK before I hit 40 in January 2015. The plan is to try to raise £10,000 through various challenges, and through getting other people involved. I hope that it will also help to raise…[Read more]

  • tom
    how dare you party with out me How is the velcade treating you or is it those pesky steroids have they given you a date for the SCT is is still wait and see love to Elaine
    Big hugs jo xx

  • BADGER replied to the topic Whoops! Number 3 in the forum Treatment 11 years ago

    Hello Andy EVE and david

    my every sympathy to you all Andy you hospital sounds on top of things thank goodness cannot say the same of yours Eve and David its a big worry to me what sort of care I will get if I need the hospital again it was pretty good last time but who knows who you will
    get another time it seems a bit of a lottery get well…[Read more]

  • BADGER replied to the topic Hi Eve in the forum General 11 years ago

    HI EVE
    my home mail address is mamajo.russell3@gmail.com
    love jox

  • BADGER replied to the topic Goodnews in the forum General 11 years ago

    That is good news with your love and care Michael should get better at home good luck and best wishes
    regards Jo

  • BADGER replied to the topic Hi Eve in the forum General 11 years ago

    HI Vicki and Colin
    thanks for your kind thoughts I seemed to have managed the MM better than the kidney issues strange but true
    Keep well love Jo

  • BADGER started the topic Hi Eve in the forum General 11 years ago

    Hi Eve
    it was nice to hear from you are you ok we all ask about slim which is important but how are you its been hard these last few years for you as well My kidneys are hanging on bu a thread as is the sword 3 weeks to the next appointment the fistula went narrow so another 1 1/2 hours with my arm hanging out on an operating table while they put…[Read more]

  • BADGER replied to the topic My Remission is over!! in the forum General 11 years ago

    Hi Eve

    my kidney score creatinine 500 I was fine all the time I was on velcade as soon as I stopped the kidneys got worse they cannot explain it so they have put in a fistula dialysis access this has gone wrong and narrowed so they put balloons up the vein yesterday venoplasty full of bruises now
    Regards to Slim
    love Jo

  • hi David

    great news news your journey has been the same as mine I believe we joined this forum 5 years ago at the same time as you say never give up keep well
    Love Jo

  • BADGER replied to the topic My Remission is over!! in the forum General 11 years ago

    Hi Mandy

    you have had a time of it lets hope now you can get better treatment at the new centre you are lucky to have a good one near
    keep well love Jo
    Hi eve how are you and slim is slim keeping ok my kidneys are rotten they have now fitted a fistula just in cse not what I wanted but hey ho
    Love Jo x

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