Good Afternoon Pat

Sorry you feel pants bet its the DEX it turned me into a monster I am generally cheerful but not while on DEX dexitude is the word for it hope you will feel better soon I bought a fetching new top today in mixed autumn colours was temped by these skinny leggings but my husband says i look like a barrel on legs:-P so went for…[Read more]

Dear Eve and Slim

thats wonderful news I agree never give up I feel there is always something round the corner Enjoy New Zealand and the grandchildren so there is light at the end of the tunnel long may it last dont forget to dip in and from time to time it will be nice to hear from you.
As for scrabble i play my 10 year old grandson he…[Read more]

hello Ann

I had swollen ankles and got really numb toes while havig CDT I think it goes with the territory toes are better now but still a bit numb on the two outer toes on each foot hope all goes well for his SCT
love Jo

good news David

heres to the next three months my Para have been 8 since last sept all other bloods ok so no panic yet
Keep well
Love Jo

Hello Pat

I see a kidney consultant every two months the only treatment I can have is a small dose of steriod ad a large dose of sodium bicarb kidneys are at about 20% but fingers crossed hanging on
Love Jo x

Hi Pat
had a consultant app yesterday wore my purple jeans and a pale lilac fleece
very fetching:-P My bones were not effected but I had renal failure so if its not one thing its another:-(
Love Jo x

Hello Pat

I am 65 and refuse to grow old gracefully I wear purple and bright pink and I dont think a colour rinse comes amiss now and again dont think much differently from when i was 40 only on the days when i had DEX which turned me into a tyrant not on any treatment at the moment things do get a bit better 😉 I had CDT not VCD bit the same…[Read more]

Hi Andy

we have just got back from Majorca I must say some sunshine and a few Sangria,s did me the world of good its funny how well we can get relaxed if we take the chance and have a holiday
Keep well and Hydrated enjoy the rest of your holiday8-)
Love Jo x

David

this is wonderful news i had every thing crossed for you, you did have to bite very hard this time;-)
love Jo

Hi Sarah Jane

I've dropped you a reply on the other page so give me a shout if you want to catch up

take care
Debs

Hi Tessa,

I would be happy to say…..my email is gascoynedeb@gmail.com

MUK have been my lifeline…and like you I am doing much to help them raise money as it is the only way I can truly thank them.

xx

Dear Sarah and Henry,

I haven't been on here for ages due to doing the Ball, but am so pleased to have read this update and to see that things are going well. You must both be feeling chuffed to bits!!

Make sure he continues to take things easy…it really does take up to a year to get back to things full on, but then…and I really mean it,…[Read more]

Hi Sarah Jane

Sorry to hear you have had to join us all, but I'm also glad you found us!

It sounds like you've had a similar story to mine…I was diagnosed at 35 with SMM with a pp of about 30 too. I slowly increased like you and eventually because of suspected bone pain in July 2010, I started treatment at the Royal Marsden.

Life will…[Read more]

Hi Kieth

sorry you have been so ill the steriods had the reverse effect on me i put on 2 stone I was on 120 mgs a week I am glad sugers are back to normal i hoped they would do
in america they use prednisolone steriod if people cannot take dex its much gentler not as agressive as DEX I have it for my kidneys at the moment and dont get many…[Read more]

Hello Les

I understand your shock same thing happened to me my creatinine was 597
i was being prepared for dialisys but my kidney consultant gave me a chance put me on a high dose of sodium bicarb and along with the high dose of steriod my kidneys improved a bit he waited to see what would happen so i have just avoided for the time being the…[Read more]

hi Chris

fingers crossed for you for the second attempt i really hope this drug works for you so you can get your SCT so glad the wedding was a success
keep us in touch with how you get on
GOOD LUCK:-P
LOVE Jo x

Welldone wendy

Keep the good news coming we are all in need of it from time to time long may it last:-)
Love Jo

Hello Amanda and Bob
welcome sorry you have had to join must be a big shock for you both you will get all the help and information you need on this site with many friends to support you keep in touch
Love Jo x

Hi Andy

keep up the good fight I am sure you will get there in the end I hope you enjoy your holiday in the lakes i hope you can relax for a time it will do you good
Love Jo x

Hi Eve and Slim

what wonderful news its just what we all want to hear so there is light at the end of the tunnel Have a wonderful holiday where are you criuseing
to somewhere warm I hope we have booked a holiday in Majorca going for 10 days. I hope you will keep in touch and not be a stranger to us
Keep well both of you
love Jo x