hello Jean
sounds to me that Frank is doing ok if it is the para protien coming down my consultant would say thats marvellous perhaps you were talking at cross perposes better go over your tape again. I t was my birthday today so we had a drive to the coast sunshine all the way for a change
Lots of love Jo x

Hi Keith

good luck with the new treatment I sure this one will work for you I know a lady in my support group who is on her fourth year of REV DEX so it sure works for some people you didnt say where you are going on hols hope its somewhere warm
Love Jo x

hello Jean
sorry frank is having a bit of PN its not very nice I was im afraid like Dia the mantra is WHAT EVER IT TAKES I will do it I was determined about it I know you will find it difficult to convince Frank but Ihope you can
Lots Of love Jo x

Hi Eve
sorry to hear slim has had a bad time of it that nurse should be sacked no other words for it hygiene should be upmost in every case but especially for people with poor immune systems really glad you can get him home he will be better of there
Lots of love Jo x

hello Andy

so sorry your SCT hasnt worked it is so frustrating because you must have been full of hope I hope the next treatment is the one for you
Love Jo x

Oh Kieth
Bl****dy hell I am so sorry I know it comes to us all but we just hope for a little bit longer, go away and enjoy your holiday and good luck for the next treatments this might be the one for you
Love Jo xx

Oh Keith,
So sorry to hear that news….I can't imagine how you must feel about it.
On the positive, I'm glad you can wait till after your holidays, and if it helps, I never suffered badly with revlimid when I had it with dex (or without the dex now). The worst thing was the fact that everything tasted peculiar….not horrid, just weird!!!
Have…[Read more]

Thanks Dia
I have just joined their web site its so interesting
Love Jo x

This is an article from Cancer Research

http://info.cancerresearchuk.org/news/archive/cancernews/2011-11-27-Scientists-identify-first-genetic-link-to-myeloma

My understanding is that we may have something that genetically means we are more likely to get myeloma than other people. BUT, there is some unusual stimulus (and they still don't know…[Read more]

Hi Paul
sounds like things have gone ok a little gentle walking should help with the legs I do hope you can get away for a few days
Keep well
Love Jo x

hello Jean
Nice to hear from you I am doing ok at the moment the next breath holding moment is in july when they check my para's the next app in June is just to check Hb levels etc to see if I need any blood. How is Frank doing are they giving him anything for the ribs although I expect the dex will help a bit although it will not help with the…[Read more]

Hello Chris
sorry you have had to join us here it must be a very difficult time for you and your husband dont be upset if your husband gets really grumpy and depressed this is the DEX talking I found it very difficult to handle I took mine in the mornig with yogurt which made it easier to swallow I took the last dose of Thalidomide before I went…[Read more]

Hi KAren,

Welcome to the site. And drop Scotty an email and she will send you an invite to the under 50 site.

We're all here to help you through the early days, which can be really scary. But you will come out the other side.

Take care
Debs x

Hi Deborah

I think Dai has given you the low down on velcade. It worked brilliantly for me, but you must watch out for the Peripheral neuropathy and don't let your mum downplay it. I did and ended up with it for 9 months and needing quite serious painkillers.

It was absolutely worth it for the result, but I was worried at one point that I…[Read more]

Hi Paul….and Andy

I just wanted to say good luck to both of you with your next steps….I am sure that there are a number of treatments still out there so try to keep positive….though I'm sure it's Bl*ody hard at times!!!

Debs x

Hi Antoinette

So sorry that you have had to join us all here, but I would also say that there isn't a better place to be.
Reading your post made me think back to when I was diagnosed in 2009. I was 34 with a 2 year old and a 4 year old and it really does turn your life upside down. I think it is natural to be teary and to feel out of control…[Read more]

hello Sue

I get my husband to have me time I think its important so if i have an appointment that may take a couple of hours he drops me off he also goes fishing once a week this is important so do not feel guilty if you do he will feel guilty for taking up all your time
love jo x

Hello Paul

sorry your treatment has not worked i dont know about DT PACE a lot of treatments are not available to me becauce of renal failure
good luck with it fingers crossed it works
love jo x

best of luck keith

i am sure you will get on holiday we have just got back from Skiathos had a good time you have go to for it,it will do you good good luck
love jo x

hello Eve

good to hear slim is not doing too badly fingers crossed all keeps going that way and he gets the remission you both deserve. i hope you can get to mettys memorial and you dont get too upset this is a bit like teaching you to suck eggs as i am the worlds worst weeper i get emotional at the drop of a hat kind regards to Slim
Love Jo x