Helen, Just wanted to say a massive thank you for all of the bits that you've sent through for the Raffle we're holding. Really kind of you and the items will really help us.

If anyone else wants to donate anything, I'd love to hear from you 🙂 After all, it's all to help raise money for MUK!!

Also, we are desperately looking for a GREAT…[Read more]

Big hugs Bridget. It sounds like you're having a really tough time so keep that chin up and I hope that you get stronger. Are you getting your appetite back at all?
Lots of love
Debs x

Oh Bridget
so glad to hear from you, you had me so worried it sounds like you are on the mend a bit now so keep it up
Love and a big big ((((hug)))):-) 😀 🙂 😛
fROM jO XXXXX

Dear Eve and Slim

I am so so sorry to hear your really sad news.

Wishing you all lots of love

Thoughts are with you
Debs xx

Welcome Jacqui

Love
Debs x

Hi Andy

sorry you have been unwell glad you are back now good luck with the rev /dex Keep well:-D
Regards Jo

hi welcome to the forum not something you would want to do but welcome have you started chemo yet or are they just monitoring you. You will get so much help and support here and a solution to a lot of your questions dont forget Myeloma uk help line they are so good and will give you good advice
Keep well:-)
Regards Jo x

Hi Stephen

Just to say, I think it is TOTALLY normal to be preoccupied with your pp levels pre transplant. I definitely was, and used to phone the hospital as soon as I thought the results would be in! It is only post transplant that I have now trained myself to wait until the next appointment! The reality is that pre-transplant, you know that…[Read more]

Hi Stephen,

Just a quick one as I have to dash out, but I am on the Myeloma XI trial and started on revlimid. After 4 cycles I also plateau'd and was randomised to Velcade. (My pp had dropped from 55 to 28 by this point). The velcade did a similar thing…dropped quite quickly in the first couple of cycles and then slowed down. I had to stop…[Read more]

Thanks Helen,

That's really kind of you!!! It's really lovely that people are prepared to go out of their way to help raise some money for the charity that supports us all so much!!

I look forward to getting the package!! It's like Christmas come early!

Debs xx

Hi Tina
hope your journy is a good one I struggled mostly with the dex and had mood swings and found I could not sleep very well I took dEX with yogurt which made it easier to swallow I managed to take 100mgs of thalidamide for a year after CDT until my feet got red hot so I had to stop good luck
And keep well:-)
Regards Jo x

Dear Sally

Welcome to this web site it must have been a big shock when you relapsed
I think its something we are all waiting for it feels like the sword of damacles hanging over me and I know I will be still shocked when it happens
because I think we just hope it will stay away I have not been on Velcade but I expect that will be my next…[Read more]

I use safari and see big and small pictures. My picture is ok though if that is what you mean by safari users being unaffected.

Debs

Hi Ann,

Welcome to the site and I hope that it gives you (and maybe Pete!) all the support that you need. It was definitely my lifeline when I first got diagnosed and everyone here is just so welcoming.

Take care and good luck
Debs x

Hi Trish,

I had my SCT last summer, and my paraprotein came down to 2. My bone marrow (another indicator of remission) was undetectable – well the abnormalities were!!

They class me as having had a Very Good Partial Response. Because my pp isn't zero, they can't class it as total remission. But in reality, I am in a sort of remission as I am…[Read more]

Hi Trisha

try MIA insurance I have used them a couple of times my insurance is a bit higher than Helen as I also have Chronic renal failure due to MM Mia seem to insure you if you have the Doc's permission to travel their number is
01268 783383 you could get a couple of quotes
Regards Jo x

Hello Stan
I am sorry your partner is so unwell there is a simple blood test for MM so your partner should ask for one Pep test is a good indicater of MM it measures the paraprotien in the blood which is one of the major indicators for the disease
Regards Jo

Hello Mavis

I really glad you are feeling a bit better and more mobile lets hope this continues
God bless
Love Jo x

Hi Jean

Like others have said, try not to worry too much. But they are totally right that Frank should just be careful who he is around over the next week or so, especially if he wants to go to Spain! He needs to be as fit as possible if he is going to insist on going. I'd also ask his consultant what he thinks. I'm off to Beijing in August but…[Read more]