hello Eve

nice to hear from you we have a few days away this week in the New Forest I hope it stays dry.
I love the theatre but not in love with musicals but Geoff is so I treated him he does so much for me he deserved a treat, then I scratched the car and he didnt moan so another treat is due!!
I am still in Plateau only 5% mm cell in my…[Read more]

Gill
what wonderful news I cannot express how pleased I am for you and Stephen long may it last or even get better something to cheer us all up:-D
Big ((hugs))
Jo

Hello Eve
I totally agree with the the statement it a really good way to think
Love Jox

Hi Eve and Slim
sorry slim is not feeling so well I hope it is just a blip after coming off meds I felt a lot of withdrawal symptoms when I came off CDT I think the drugs have to work there way out of the system I havn't slept as well since not having Thalidomide. I am still lucky enough to be in Plateau I don't know how long for so fingers…[Read more]

Hello Phil
congratulations on a good remission I really hope it lasts for years for you
Regards Jo

DIA
You are a one off yes very different a medical conumdrum indeed:-/ I really hope you can hold out for the next three weeks I am the other way round if things change it shows up in my urine almost straight away . I saw my consultant the other day and apparently I am still in plateau so fingers crossed I will soon be clear for three years I…[Read more]

HI Kay,

I am so sorry that you're having to think about all of this so soon after transplant. I feel terrible that I haven't emailed you recently. I hope that your results on Monday went ok …have you been put on Revlimid…I'm on that and so far things are ok (although I may ask to come off it as I seem to get permanently ill….not how most…[Read more]

Hi Nicola,

I'm sorry to hear about your dad being in so much pain and feeling so down about it. But it sounds like you're doing an amazing job in helping him to stay positive.

I haven't been on here much recently as I haven't been too well, and now I am busy….trying to organise my first charity ball!! I'm no expert on it and if you speak…[Read more]

Well Dia
lifes a bitch:-( I am so sorry about the short remmission I will be praying for you in the hope your results are right In America they are using carfilzomid a lot I have been reading James Berensons blog and he has great hopes for this drug.:-) It will be a long haul but I would definately go for it you have nothing to lose
A GREAT…[Read more]

oH Bridget

you are being so brave I hope this works for you I am keeping everything crosssed that it works you deserve a really long break from it all I hope the back ache is just a muscle problem and nothing else after all you have been lying around too much:-D and taking it easy ''What just two loads of washing'' is that all

Love and big…[Read more]

Great news eve
lets hope it lasts a real long time so yuou both can get on with your lives and enjoy your travelling again:-)
Love Jo

hello Glenn
I dont think we ever really get over the shock ''why me '' I am a bit older than you I retired early one day ok next day in hospital with renal failure double pnuemonia and MYELOMA that was three years ago I managed with the thalidmide and have been in remmission for nearly three years I didnt have an SCT( my choice )as my kidneys…[Read more]

Hello Kay
so sorry about your PP levels lets hope its just a blip good luck with your scan on friday I will be thinking about you with fingers crossed
Lots of love and (((hugs)) Jo

Hi Eve

glad you had a good christmas and Slim managed to enjoy it as you lets hope next year is a good year for us all:-)
Happy nand a healthy new year to you and SLIM
lOVE Jo x8-)

Hello Shirls

glad you had a super christmas its nice to be spoiled isnt it we had the family over two girls and thier husband and our grandson who doent srop talking my husband cooked a lovely dinner we had a quiet boxing day but we are going out new years eve hope I can stand the pace!
I would like to wish you both a Happy and Healthy New…[Read more]

Hello Jean

what a lovely picture I am glad you had a happy day it must have been a lovely time glad Frank was ok now its the summer to look forward to and some sunshine Happy New year to you and frank
Love Jo x

Hi MIN
a christmas wish to you I hope you will have a good time with your family good luck for the new year
Love Jo x:-D

A very Happy birthday Dia
it sounds like you will have fun merry christmas and a good and healthy new year:-)
Love and hugs Jo x