Hello Tom

I live in Hatfield Herfordshire I attend Lister hospital and uch London
I am 64 will you still love me!!! no tune like an old tune

Love Jo x

Hi guys
Just a note to say I was prescribed pregablin or lyrica but my GP wouldn't prescribe it as our local PCT has blacklisted it!! We are in the process of appealing it but as you can imagine it is a long process. I'm doing fairly well on gapapentin and nortriptylin and even trying to get rid of the oromorph which I've become dependent on. But…[Read more]

😎 Hi Tom

thanks for the mail address that was a (((sooper))) thought 🙂
Love Jo8-)

Dear Mavis

they are treating my MM early because of my kidneys on failure last time I had 22% bench jones which was a major factor in the failure so although my PP's are low the bench jones is rising so they thought better early intervention would be better I am having velcade infusion at my local hospital in Hertfordshire but UCH have said if…[Read more]

Hello Jean

glad you found it what about that weather in NI does it ever stop raining no wonder you always want a break in sunny places you have had a shocking summer saw the forcast for today more rain!!:-(

Love Jo:-) 😎 😉

Hello Wendy
my husband has chilli cream from our docter he has some PN in feet and legs from diabeties they were very reluctant to give him as they said it was expensive but when I look it up on the internet it £18 a tube so theymust consider that expensive it make you wonder what the price is of some of the generic drugs they give us I know his…[Read more]

Hello Dear Tom
you did get away with it how clever thankyou for my cyber rubs they helped but it was ouch ouch!! on the day:-( I am determined to crack this next lot of treatment Dex is working its magic so not much sleep there then still walking as much as poss Dr Yong at UCH cannot stress enough the importance of exercise for Myeloma patients…[Read more]

Hi Kieth

thanks for the encouraging words I will face upto the ogre Like you have done I am really glad your second SCT seems successful:-) never never give up
Love Jo x

Hi Gill and Stephen

sorry the second SCT failed but the new thinking is now drug therapy its the new big thing in America and when I was at UCH they said Dr Yong is the lead here I really hope this new regime works and gives stephen a long remmission I know about the dexitude I am also on a lower dose now but I feel a bit grumpy but trying hard…[Read more]

Hello Jean
if yoy leave the curser at the end of your sentence and click on the smiley face:-) it will put a punctuation mark which when you post it will show a smiley face good luck
love jo x

Hi Gill

so glad stephen is fit enough to travel you must really be looking forward to it you both deserve a good holiday
love jo x

Scott
I will keep up the fight i was determind to do what it takes the first time as I will this time planning a trip tp Majorca next may so something to aim for:-)
Love Jo x

Dia Thanks for your lovely reply they are giving me a low dose as UCH now believe lower doses can be just as effective they will introduce a lower dose of cyclphomide later 250 mgs
Love Jo x

Hello everyone

thank you for all your encourageing words they really cheered me up
the BM was horrible as they had to have three digs as my bones are difficult to aspirate so I have a bit of a sore bum at the moment:-(
Love JO X;-)

Hello Dave and welcome
you have really been though the mill but you sound a very determined character so I think you will cope very well with SCT we are very aprehensive about all trearments will they work can I cope I think you need to have faith in your medical team they are only trying their best for you
So good luck and keep in touch

Love Jo

Hi Bridget

so glad you are manageing the treatment what sort of dose are you on for the thalidomide I found when on that and dex it was the only way to get a good sleep I say my prayers for you that this works and gives a you a long relief you certainly deserve it

Lots of love Jo x 🙂

hi Tom

kitcken looks great is the money pot a swear box! no never not you tom
I hope you are keeping well or you will be if you dont drink all the vodka!!lol

Big ((hugs))
Love Jo xx:-) 🙂 🙂

hI Helen

I think keeping up appearances is important ''going grey never '' I aim to grow old disgracefully a nice chestnut rinse is my choice semi perm so lasts about two months I use E45 for dry skin it works for me as for fingers and nails if you can find some cotton gloves smarm your hands and nails with lanolin and leave over night my gran…[Read more]