Hello dear Tom

always cheerful advise I hope you are keeping ok I have hd a bad week very heavy Anti B's some sort of stomach bug hope its on its way ou now!!!
Big ((HUG))
lOVE jO X

hello Jim

Sorry you have had to join It must have been such a shock for you as it is for us all I think the first question is why me!! but you are only 40 where a lot of us are in our 50 and 60s we all have to be positive there seem to more drugs and treatments everyday soCHIN UP:-)
Love Jo

I know the Marsden is finally giving it subcutaneously but also that if you are on a trial it ISN'T available. Hopefully one day even that will change as there's no way I'd have velcade again unless it wAs subcut. The pn has been too uncomfortable.

Gina
So sorry to hear that. Must be so hard for you and your family.
I hope you have some time ahead to unite as a family
Debs x

Hi Kay,
Well it is actually my 100 day today…I think!! Happy Bday to me!
I too get achy bones….feels like I've just done loads of exercise and is mainly in my calves. I think it is the PN personally as it gets better with the morphine….well not better, just more bearable.
I am now on gabopentin and nortryptalin. It helps the PN loads and…[Read more]

hI Bet you both stir crazy by now half a cider sounds great my favourite drink I bet the cats are missing you too do you sleep in the hospital glad mal kept his dinner down must be a good sign
Big ((((HUGS)))
Love Jo x

Hi Dai,
Sorry that you are ill…you are right about the weekend thing…I felt awful on Thursday and Friday, and probably should have been sensible and not gone to the London Infoday today. Especially since my son was sick this morning!! Typical!
…..I did go though and had a headache throughout the whole day which I've finally knocked on the…[Read more]

Hi Gilly,
You don't say how long you have worked for them or what your contract says? BUT you are covered by the disability discrimination act and they should be prepared to make 'reasonable adjustments'.
I would suggest you or your union rep should go to Acas and ask for some guidance as you might have a strong case. Your local CAB might be…[Read more]

Hello Mal and Bruce

Sorry Bruce is not feeling so good I hope he picks up soon he must be feeling rotten I think fever goes with the STC so lets hope you can go home soon
Love Jo x

Hello Dia

so sorry you are not well why is it that the hospitals do not expect you to get ill over the weekend they must know as well as any body you get sick at any time of the week day or night We were supposed to go to the London info day but Geoff has a really bad stomach bug I didnt want to leave him as he is quite poorly:-(
Love Jo

Gill, you made me laugh! 🙂

Don't be put to shame….we all deal with stuff differently and for me it is the best way of forgetting what is going on….I find it hard to do that if I am not running round like a headless chicken!!! And I also find it a challenge to raise BIG money – I hope the ball next year will do that – would like to raise…[Read more]

Hi Scott
Have a good party on Saturday!!
Will try to pass on best, but you know what these consultants can be like….very elusive!!
Take care
Debs x

THanks Gill – not sure if it's good or bad that I'd be recognised anywhere!!
Someone the other day said they wouldn't want to bump into me on the street – maybe I wasn't smiling then!!
Doing ok thanks….waiting for 3 month post-SCT results on Tuesday so a bit nervous in case of relapse, but keeping busy organising my tabletop sale, and have…[Read more]

Bridget

You are marvellous I am sure no one will worry about hats so long as you start to feel better get all the sleep you can for I expect when you start your new treatment next week I guess DEX will be involved so no sleep there then, I am at UCH next week on thursday what day are you there
tRY and keep well
Love and big ((((hugs))))

Jo:-)

So well done Nettie you are so brave where did you find the courage
I like Tom said my prayers for you to come though safely
HURRAH FOR NETTIE

lOVE jO XXX

Hi Elaine

glad you have found us you will find this site so supportive full of kind words and advise you are not alone we all care here. When I had CDT they gave me an anti B which gave me a rash so they had to stop it the rash looked like German measles it was called ciprofloxin perhaps it is something like that causing your rash
Keep in…[Read more]

Hi Mal and Bruce
HAPPY ANNIVERSERY TO YOU BOTH AND MANY MORE TO COME

LOVE Jo

Hello Caz

welcome to the group sorry you have had to join but you will find so many new friends here ready to give you help and advise and dont forget Myeloma uk's help line they are so good. The eating bit is difficult I ate only what I fancied that way I at least ate something as a child when not well it was always lemonade and Hienz tomato…[Read more]

Hi Elaine,
Welcome to the site and I hope it is as helpful for you as I find it. I think it is full of lovely, caring people!
I hope you cope with your treatment. It seems that each treatment is different for everyone so it is hard to say about side effects, but just make sure you mention everything to your consultant/ nurse specialist. They…[Read more]

Hi Helen

Tabletop sale is on the 6th November but we've made £150 already on a gym membership that was donated….am hoping to get over £500 in total. Then on to organising the ball I want to do next year!!

Tracey, that is very kind of you but VERY misguided. I could only wish to look like Kate. Sadly neither my face, nor my body looks l…[Read more]