hi Nettie

how brave are you but go for it girl you will be fine never mind the almost OAP
you are only as young as you feel
GOOD LUCK;-)
lOVE jO

hi Bridget

Hats glorious hats I can recommend your hats they are pretty and stylish
Glad you are feeling a bit better hope the RT is kicking in and reducing your pain PS I wore my hats alot last winter

Lots of love Jo xx;-)

Hi Eve

Hope you both can make it the parking is just out side the venue which is next to London Zoo last year there was loads of parking if you needed it
Love Jo

Hi Helen,
I've been a bit different to you…I have told the world what I'm going through – stemming from when I did the Yorkshire 3 Peaks to raise £15k for MMUK. I sort of had to tell my story for that.
So, no, I don't wear anything on my head at all! Very refreshing and people assure me I have a nice shaped head (?!).
My SCT was on the 18th…[Read more]

Gill

wish Stephen all the luck for his op lets hope it all goes smoothly We have been called into our surgery for the flu jobs so our lot are on the ball
Regards to stephen ps i CANNOT SPELL FOR TOFFEE
Love JO

Hello Scott

just to mention there is a really interesting article on the web look up Sodium bicarbonate and cancer treatment it a good read
Regards Jo

Hello Ali

my renal Doc seems to want to keep me on the high dose of sodium bicarb
so I will have to keep rattling for now as for the bone food they put me on a low dose of premidrinate just 30mgs once a month I dont seem to have any problems withit. We had a good holiday in Scotland with only two days rain in two weeks8-)glad you had a good…[Read more]

Hi Gina

glad you enjoyed the info day I have found them so informative and my husband who is my carer got a lot out of the day we are going to the London one in October
Hope Mum is ok:-)
Love Jo

Hi Eve

Hope Slim is doing ok just to let you know the next info day In London is this October if you could make it

Love to Slim
Regards Jo

Welcome Alexis and John
glad you have found time to post you are very welcome please tell us about your and Johns journey we will all be interested:-)
Love Jo

Hello Aileen

sorry you have had to join this group but welcome you will find all the support and help on this site you amy find it a relief to talk to other sufferes as not many people in the big wide world have heard of it.
Dont forget the Myeloma uk help line they are brilliant:-)

Keep well love Jo

Hi Helen,
I never bothered with a wig I have to say. My mum bought me one (over £200!!!) as I was worried how the kids would react, but they were brilliant and I just found the idea of it too hot, and not me. When they didn't react to the hair (other than saying it felt like a hamster :-/ )I never bothered wearing it, and now find myself…[Read more]

Hi Aileen,
Sorry to hear of your diagnosis but really pleased that you have found this site. I hope that it helps you along this journey that you find yourself on…and that we can help you too.
Ask any question…none is stupid…we've all been there no matter how much it seems like we use all the jargon…sadly we've learnt it over time.
Take…[Read more]

Hello Bridget

sorry you had a bad day yesterday lets hope the RT treament kicks in quickly this time and get rid of your pain I am sure UCH will pull out all the stops for you to get the drug and Myeloma uk will be able to help as well chin up thinking of you all the time
Great big (((((HUGS))))
lOVE jO

hi Scott

glad you are enjoying the golf Geoff and I walk a lot we usually do three miles every day but we go on a longer walk once a week yesterday we walked five miles its lovely to be outside in the good weather I agree with MacMillan I am sure exercise aids recovery:-) I think the sick feelings are due to the sodium bicarbonate we are both…[Read more]

Hi Sandra,
I was told to be very careful and spent the first few weeks adhering to that advice. But with 2 young kiddies, I can't avoid being out and about, so I have to say, I haven't been so careful since. I go shopping at the normal times etc. I sort of forget that I am ill still and that my levels are low!!! I should probably be more careful…[Read more]

Hi Gill

good luck with the course I am sure you will soon get into the seing of things:-)
Love Jo;-)

Hi eve

you have got it about right except you need to add bread and cheese
chesa bacadilla sorry about the spelling

Cheers love Jo xx8-)

Yippee

what good news it has really cheered me up long may it last perhaps you can get to Majorca now to hear your daughter sing
Keep well:-)
Love Jo

Hi Scott
thats rather a lot of bicarb does it upset your stomach a bit mine does some times. I forgot I also take on Omeprazole 10mgs and a 75mg aspirin
its a wonder we don't rattle. I agree about the SCT it was not for me if I was a lot younger it might be a different story have a good holiday8-)
Love Jo;-)