Dear Min,
I really don't know what to say except that your post has brought a tear to my eyes and I am just so so sorry about Peter.
With all my thoughts and lots of love
Debs x

Thanks everyone for your responses….I've been 3 months off the velcade so have this horrid feeling this could be a permanent gift of getting a short term remission 🙁

I will definitely try to get referred to Macmillan for pain support…I'm hoping for something less 'druggy' as the gabapentin isn't doing much and nor is the…[Read more]

Hello Dia

sorry you are not to well lets hope the anti B's soon sort you out you need to be fit and well for your holiday with your family

Love Jo

PS enjoy your hols x

Hi Tom

I missed your post about the kitchen well done you must be very skilled to fit a new one. We are going up the east coast starting in Durham for a couple of nights then on to Edinburgh then to inverness for a couple of nights then down loch Lomond 3 stops on the way down stopping in Carlisle and Tamworth on the way back we have free…[Read more]

Hello Tom

Where have you been I have missed your cheery face have you be taking the young bride on an exotic holiday or what have you been upto 😛 We are going to Scotland on tuesday I bet we need snorkels and flippers by the look of the forcast oh well onwards and upwards as you would say8-)
Keep well
Love Jox

Hello Dia

I too am old enough to remember 2/6 half a crown that was my pocket money;-)

as for getting confused I am always making journeys up and down stairs forgetting what I went up for going out in the car getting to the end of the road and turning back having forgotten some:-P thing again I think its call senior moments
Love Jo

Hi Gill and Stephen

I am so sorry Stephen is still not feeling so well lets hope he is soon up and walking like he did sfter the first SCT
GOOD lUCK
Regards jO

hi min

dont beat yourself up about your caring skills i dont think peter would be hear if it wasnt for you and your care so chin up and look after yourself

Love Jo

i also cried she was so brave and tried so hard an inspiration to us all Rest in Peace Gaye
Love Jo

Hi Russell,

So sorry that you've had to come and join us on here but hopefully IF you get the official MM diagnosis, you can come to lean on all of us for help and support. I was 34 when I was diagnosed 2 years ago with smouldering myeloma. I then started treatment in 2010 and had my transplant just over a month ago.
It is tough going and you…[Read more]

Congrats Carol great news keep on letting us know how you are getting on
A lady in my support group was one of the first to get revlimid our MP fought to get it for her, she has been on it for nearly four years and now she has a dose of 15mgs every other day and no Dex she is well and her Para are stil 0 so plenty of hope there

Keep well…[Read more]

I do know what you mean I always feel good after a walk and knowing that I can do it I will do it it does give you small sense of I am in charge.
I also am not allowed to run so it just as well I have never liked it anyway always a tortoise never the Hare

Keep well Love Jo

Hi David

I have exercised since I finished CDT it always makes me feel better my husband Geoff and I usually walk about three miles every day it takes us about an hour not rushing then! we swim some times but I am a bit worried about infections from the public pool any way Mc Millian have said just this last week all cancer suffers should do…[Read more]

Hi Min

When I was first diagnosed and in hospital the food was so vile I was losing weight by the day so my husband and daughter smuggled in my preference large Mac D's cheeseburgers I am sure they kept me alive
Hope Peter is home and well soon

Love Jo:-P

Oh lovely Bridget,
I'm so sorry to hear that your instincts were right…..life is so unfair and you so don't deserve this.But as always, you are handling it with an inspirational grace and humour and that is a lesson to all of us.
Good luck with your appt next week – I hope they get a great concoction that beats the b*****d!!!
Lots of…[Read more]

hello bridget

swear and cry as much as you would like this b*****stared disease gets you on the edge of madness you where right about the pain you said it was something different this time again.Have you spoken to them about thalidomide you didnt have it first time round look at Peters results it seems to have worked for him when the other…[Read more]

Dia

you always manage to put into words what many of us are thinking and are not able to put into print as well as you do. There will always be dark days but we should be able to put our shoulders back and face the world never give up,we must fight to live not give in and die;-)

Reards Jo

Hi Gina

glad your mum is feeling a bit better I really hope this is the last of it I can understand her wanting to come home as there is no rest in hospital your own bed is always best but convince her if they think she should stay she must

lOVE jo x

Hello Sally

so sorry to hear about your dad and your mum it must be difficult for you to see the people you love suffering in one way or another if mum is mentally ill there is not much can be done for her until it is recognised
as for your dad the main problem with the treatment can be for some people extreme tiredness it seems to take all…[Read more]