Oh it's definitely not just you guys! Loads of us (esp women it seems) have put on weight….I've put on nearly 2 stone and gone up one and a half dress sizes. Very depressing. But a little of it has dropped off since I came off the steroids in anticipation of my SCT on Monday. And I hope the rest will come off with the SCT itself….surely 2…[Read more]

Hi Shirls

sorry you are not feeling so good at the moment I hope it passes soon
how are your aches and pains from the fall, i know its good to be positive but I try but do have some down days
Keep well
love JO 🙂

Hello Scott
I see you may be taking the same route as me I chose not to have SCT as the full strength chemo could have finished my kidneys off completly. When I was diagnosed Jan 2009 I had really bad kidney failure due to MM my creatinine was 485 and I was on the verge of dialysis it is now (last reading 239 ) after CDT which I finished april…[Read more]

Hello Peggy

Rant away we all feel like that especially when first diagnosed and on steriods! and yes there will be people who dont want to know you now but they are not worth worrying about just appreciate true friends. SCT is stem cell transplant
my kidneys were too bad and I didnt want to risk the agressive chemo which you have to have with…[Read more]

Hello Sarah

so sorry Gordons SCT didn,t work it must have been a hammer blow on the positive side new drugs are coming on line all the time, look at Mins post good old CDT is working for Peter second time around so don't lose hope
Love Jo

hi Tom

thanks I am still doing ok last paraprotien in a band to fient to measure so onwards and upwards I always have someone looking over my shoulder Geoff my husband he TRIES!!! to keep me in line
Lots of love Jo8-)

Hello Peggy

I hope you have a happy birthday tomorrow I am sure you will get some help with all your meds and your daughter, speak to MacMillan they can be so helpful I was diagnosed with renal failure so not had an SCT but I have managed so far on drugs alone I was diagnosed in jan 2009
Good Luck
Love Jox

Tom what is it with you and cucumbers, I like them in a good strong glass of Pymms:-P 😎 😉 Love Jox

Hello Gill
welcome to this site not the words you would want to hear, You will find many friends and a wealth of good information and support go ahead have a good drink for your birthday and why not I was diagnose in jan 2009 I was 61 I have been in plateau since may 2009 no SCT due to major kidney damage
GOOD LUCK 😉
Love Jo

TOM
You will never be just a mere mail hows the young bride, still keeping you in check

Love Jo:-P

Dia
your daughter has a good voice shame someone doesn't pick her up she is to good for tribute bands any way if the Velcade works Majorca is only a couple of hours away
Keep Well
Love Jo8-)

Yes fingers crossed for you Jet hopeing all is well with you I have looked at your blog you havn't posted for a couple of weeks
Love Jo;-)

Good news Keith

good luck with the SCT fingers crossed for you see you on the other side
well fit and happy

Love Jo;-)

Hello gILL
What a shocked state you must be in it took me at least three months before I could come to terms with it I just didnt want to speak about it.
the phone line to myeloma uk is so valuable, there is a specialist nurse to talk to I found it such a help because you feel so alone when you go to the specialist take a pad with all the…[Read more]

Dia

keep on mixing, I am so sorry you have had such side effects lets hope the symtoms get better soon I agree the nursing staff are all about the treatment not you and the effects some times I think we need some pastoral care which is not all that evident thinking of you wishing you a good night sleep
Keep well
Love Jo;-)

Hi
sorry you have to join this site but myeloma uk is the very best place to go for information I agree with Kay take a pen and pad and write down all the questions you want to ask you will always forget to ask something if you dont then always write down the answers so you remember when you get home
Love Jo

Hi Bridget

glad you are back on line so sorry they have not got on top of your pain
it must be awful to be in pain all day and you dont want to wiped out either it sounds like making a cake but they havn't got the mixture right yet I really hope they do soon, keep in touch love Jo:-/ 😉 x

Min

I agree with bridget perhaps the hopital should have offered peter councelling as well as drugs all these doctors look after the body but not the mind, I am really glad he has perked up a bit to make you lunch this could be the start of a new mindset with him hopefully he may become more positive can someone come to your house to give you a…[Read more]

Hello Angelina

My fingers are crossed too I will send you one of my guardian angels I am sure they will smile on you
Love and a big ((hug))
Jo x