Welcome Ali and Guy

SO sorry you had to join this club it has been a great comfort to me as I am sure it will be to you when you are in the darkest places there is always someone with advise and comforting words I now its hared to find anyone in the big wide world that has heard of Myeloma that is why this site is so important

Be strong love jO 🙂

hello annika

I had cdt treatment I was 61 I tolerated it pretty well except the emotional bits with the hated DEX I have had MM for 2.5 years now or that was when it was diagnosed I am sure I had it for quite a bit before that there are people in my clinic about your husbands age who are doing very well on the medication so hopefully he will be…[Read more]

Hi Mike,
Do you know what….it is probably quite good that you aren't caught up with figures….they're the bain of my life…lol!!! But that's great news that your team are all really pleased with the progress.

I wish I got the dex effect sometimes…could do with the energy rush…but then again, I don't get the 'devil' dex effect either so…[Read more]

Wonderful news Eve

so glad slim is home you can build him up now you can feed him on all the things he likes, you really do find out true friends in times of trouble dont you, sounds as if you have some really good ones
Keep us posted

Love Jo 😎

Dear Tina

I was so sorry to hear about the loss of your husband Patrick

My thoughts are with you and your family

Love JO

Susan

I was so so to hear about Kevin my thoughts go out to you and you family

I followed Kevins story from all his post on the old site he was an inspiration to us all and yes one of the good guys

God bless Jo

Brilliant news David what a relief your other reading sound ok to so no more treatment yet Keep practicing on the bike the numb bum gets better
or put a cushion on your seat:-) You can now relax for a bit and enjoy life 😎

Love Jo x

Eve so glad slim is starting to recover my thoughts and prayers have been with you both, he must be a very strong man to be able to come through all that has happened I hope he will be home with you very soon
Love jO:-)

Hi mike. I,m not surprised that you took some time out…there's a lot to take on board at the start. I'm glad to hear it's all started off ok though! I'm now on velcade but have a feeling it may not be respondig much now. Got 3 cycles from revlimid and looks like it could the same with the velcade. Find out more in a couple of weeks. How did u…[Read more]

Dear, dear Tina,
I have only just come online and read this and wanted to say just how very sorry I am for your loss. When I met you it was so apparent what a strength and support you were to him throughout your journey with this disease. My thoughts are with you and your family so much and I hope and pray you have many many happy memories of him…[Read more]

Hello Jean

fingers cross for the cruise you must be really looking forward to it especially with the family where do you hope to cruise to hope it is some where warm

Love Jox 😎

Hello Kathleen

I think it is very natural to be tired my husband did everything for me when I was at my worst it really got him down especially doing things like washing and ironing which he hadnt done before he has always cooked but it was slightly different when he had to do it all but he did all this cheerfully but I know it really tired him…[Read more]

Hello Jean

glad frank was right about the pulled muscles but he was a naughty boy to worry you so much how did he get on with the MRI scan hope it went went well I hope you get insurance for the cruise it will do you both good plenty of g&t's and not having to worry about driving..

Love JO XX

Hi Eve and Tom

Ditto not offended in anyway and tom you are looking gorgeous must be all the attention from the young bride :-S

Eve I do hope slim is feeling a bit better and now getting all the attention he needs

Min your posts are wonderful so full of help and information

Love Jo xx

Hi Sharpy

I have had two years remmision fingers crossed it lasts a lot longer,
didnt have an SCT due to major kidney damage had CDT for four months follow by a year on 100mgs thalidomide hope this helps.Para protien last month was in a band to fient to measure

Love Jo 😎

Hi eve

Just wanted to say firstly to keep strong with slim and remember all the experts you have working with him. He sounds like a fighter too so hopefully you'll look back on this in a month and wonder what the worry was about …I hope so as you're v inspirational people!
As to the complaint , I'm with Tom…..would take awful lot for me to…[Read more]

Hi Eve
dont be sorry you have been through a real worring time I expect you had a lot on your mind and you were exhausted hope slim is feeling a bit better
Love from jO XX

Hello Dia

Just love the blues we go to as many gigs a we can the last really good one was willy and the poor boys if you have not come across them you should have a go on the net last CD we bought was John Mooney
Like your stuff as well
Love JO xx 😎

Hello A plus a monthly dose of pamidrinatengelina

thank you for the hugs I need them
I was diagnosed in jan 2009 entered hospital with double pnumonia renal failure and MM I also needed eight units of blood
First line of treatment was a big mistake idarubicin, damaged my kidneys even further then had 5 lots of CDT then took thalidmide for a…[Read more]

Hello Anghelina

I was very intered in Johns story did he take any medicine after the CDT apart from pain killers and bone strengthner he had a good remission a lot of people have SCT and only get a year or eighteen months remmission

Kind Regards Jo 😉