hI Debs

When I was on CDT I didnt get sinus but the same as Bridget a constantly runny nose which got worse when I ate anything
but I did get a cold which left me with bad sinus pain for a while.
Love Jo

What lovely news….Congratulations to you both, and whether the celebrations are this month, or in 3, I hope that you have the most fantastic day.

I hope that your daughters can both make it so that it is a real family affair.

I'm with Bridget, go shopping and buy lots of lovely thing….all neccessary of course (;-) ….esp those lovely…[Read more]

Hi sarah

Kate Humbel hasnt got anything on you she mostly watches and make silly comments:-D
Bridget I always am doing silly things I do wonder at tImes

Love Jo xxx:-S

Hi eve

its good to get these things off your chest when I go to see my consultant he is always an hour over time as they double book him we waited four and a half hours once and then when i needed Thalidamide I had to wait two hours every time for the drugs we used to go and have lunch in the cafe in the hospital also the blood test clinic can…[Read more]

Hi Min
Hope Peter is ok now and you can get away for a few days it will do you both good lets hope the infections stay away

Love Jo

Good luck dia I hope your next appointment is a positive one we are all cheering for you :-0
Love Jo

hi mike

sorry to have to welcome you to the site but you will find your online friends here are so caring and helpful
I had type two diabetes before i was diagnosed so unfortunatly when taking the DEX I had to go on to insulin as it raised my sugars so much. Myeloma uk is a brilliant organisation they are so helpful and the line to the nurse…[Read more]

hello Dia

My husband and I went to the london info day last october it was a brilliant day and was over almost before it began as it was so informative and a very positive day I really felt uplifted Myeloma uk do a brilliant job even the catering was first class the break out groups were good with one just for carers which my husband found…[Read more]

Morning Mike,
Hope today goes really well for you…I remember being a bit manic the first day…don't think it was the drugs, just a wierd sense of anticipation of what might come! It all calmed down then!
Not sure what advice they'll give you re the revlimid, but I used to take it in the morning with my dex. I found that I didn't sleep well at…[Read more]

Jet,
I think you might find your figures are your lightchains rather than your paraproteins if you're talking about hundreds and thousands.
Debs

Hi Mike,
Welcome and sorry again that you've joined us all!
I am on the Myeloma XI trial too….did 4 cycles on revlimid starting in November, and after plateauing am now on the velcade arm for at least 4 cycles. The terminology is probably all a bit alien still for you (sorry, that wasn't meant to sound patronising!) but just ask away and…[Read more]

Hi Dai,

We went to the London one last year and I have to say while I was dreading how long the day would be, it was over before we knew it, and I wished I'd had longer to go to more of the sessions!!

The only tip to making the most of it perhaps is for you to split when it comes to the split sessions, and that way you can report back to…[Read more]

i am so sorry to hear about your brother what a terrible shock which I know for you will hard to come to terms with I send you Big HUG you have every right to be angry Myeloma uk started the take 2 campagn for this reason as too many people have a late diagnosis as so many doctor ignore the symtoms which a simple blood test could solve my thoughts…[Read more]

I am so so sorry for the loss of your brothers. I cannot even begin to imagine how you are feeling at the moment and how hard this must be for you and your family.

I don't really know what else to say except to how much I will be thinking of you and your family. And remember, you don't have to come to terms with it quickly. Use this period to…[Read more]

Hi Keith,
So glad to hear that you have responded. Gosh it has really made me realised just how different we all are with our MM. My pp's went down from 50 to 27 on revlimid and they didn't class it as a very good response!!!

Am now on the velcade and on week 3 of my first cycle. The first two weeks were problem free bar ABSOLUTE exhaustion…[Read more]

Hi Bridget

I too read the mail on line it saves buying a paper I was wondering how you are if you are now getting over the worst side effects of the revlimid
has you RT treatment relieved your pain

Lots of love Jo x8-)

Dear David

You are a very cheerful person always trying to give is a good story
I think your name suits you well keep us laughing

Love Jo x:-P

Hello Jean

I hope you and frank have a great holiday and come back nice and relaxed with a good sun tan
Love Jo 😎

Made me blub too!!

Aren't kids just so special xxx