Hi Gaye
sorry hear your back pain is not much better will they be able to operate if the RT doesn't work how are you getting on with your new treatment have you had any results yet

Keep well
Love JO

😎 hi Ladies and gentleman
I have found bras a pest most of my life as I have always been on the plump size and more plumpish on steriods I had to wear one I have found a sports bra with good support and no bones the best when my ribs were painfull I popped 3 ribs which was agony
Onwards and upward

Love Jo 😀

Hi there.

Sorry to hear that Patrick's having a bad time with cramps Tina….can't be pleasant at all…then again, what is with MM!! Hope yours aren't too bad either Gaye.

Think I'll be off the revlimid soon….I seem to have plateaud so it looks like in a couple of weeks I'll be randomised (within the Myeloma XI trial) for either velcade…[Read more]

Brilliant game David I enjoyed playing it got all the countries correct
but not in the right places

Love Jo :-S

hello Jet

I have been reading your blog I hope you are feeling a bit better now I know the shock must have been terrible for you if its any consolation I did not lose my hair during trearment(CDT) your hair looks wonderful such a lovely colour
Love Jo 😎

Hello Ruth

I can relate to your worries MYELOMA is an awful diagnosis at any age but 29 is so young you will get all the help and encouragement you need from this site which may become important to you as you are seperated from your partner the hopital may be reluctant to give you any real information
Good Luck Jo

Hi Ruth,
I am so sorry about the news about your husband….of course you are upset and worried about him, and for your children.
He is really young, I was 34 (with a then 2 and 4 year old)when I was first diagnosed with asymptomatic myeloma in July 2009 and I started treatment November 2010. When you first hear the news, it is terrifying, but,…[Read more]

Hello Jon

WELCOME to the site it is the very best place for support help and information especially to know you are not alone all the odd and disturbing symtoms you may get there will always be someone who has had it before and can talk it though with you I hope they sort out your pain soon good luck for the journey
Keep well
Jo 😎

Here you go Jon….Scotty and Phil's email addresses….Scotty is often abroad with work but email them both and one of them will sort you out with an invite

phil.kelly2@btinternet.com

c.scott@added-value.com

See you on there.

Hi again Jon,

We're real rebels on this bit!!! Not really. I think Scotty and Phil set it up originally for people that bit younger who have slightly different concerns. Work, young kids etc. And the idea that with all that, that life suddenly looks very different when you're diagnosed with MM.

If you go onto the main bit you can get Scotty…[Read more]

What great news Nicki…..hope all goes well with the house move and that you have a lovely break in Poland.

Happy Wedding Anniversary 🙂

Love
Debs x

Hi Jon,

Welcome to the MMUK site and I think and hope you'll find it a great place to get info, support and friends! I don't think I could have managed without this and the Under 50 site. That, and like you say, a hugely supportive group of family and friends.

You don't come across as arrogant at all….very positive, especially considering…[Read more]

Hello David

great news it all looks positive your consultant must be please if he is only going to see you in two months keep up the good work

Love Jo x 😎

Hello Kath

Jolly good too, I agree we all have bad days so its all right then to feel like that you have a lot to contend with

Keep well Love Jo x

Hello Sandie

I think it will be ok for your mum as she doesn't need treatment yet and fingers crossed for you lets hope its just a false alarm

Regards Jo 🙂

Hi Min

good one it got me too I thought what!!! is she doing

Love Jo x

hello Eve

I had CDT so I can relate to the problems also had kidney damage so have had to take drugs for that I found that taking the DEX in the morning and the thalidamide at night I was not awake all night which seems to happen with DEX if witha glass of milk helps the dex down I know some people take it with yogurt I took all my other…[Read more]

Hi Marion,

I'm currently on the Myeloma XI trial and got the revlimid (lenalidomide)branch of it. It seems like the side effects are different for everyone but I have to say that I have had minimal side effects in the grand scheme of things. Tiredness, tenderness and some breathlessness and awful tastes seem to have been the worst for me (oh…[Read more]

Hi

I loved thye frog dance it made me laugh for ages thank you

LOVE JO 😎