hi Min

tried that it didn't work I shall just have to get another image if I can remember how to do it i am not very good with technology.
I have had sciatica for the last six weeks( agony )I have had some relief I went to an accupunture clinic it really helped with the pain thanks for trying to help me hope you feel better soon
Love Jo x

Hi min

I have tried several times to do my photo it always comes out blurred i must br doing something wrong but I dont know what :-S
Regards JO

Hi Min

Fingers crossed, retirement i can really recommed it this will be time for you to do what you want most of the time, if you are like i was working full time for most of my life its a return to freedom

Good luck Jo 🙂

Hi Tom glad you are doing well 13 months is great:-) I am not so keen on this new web site:-/ as i found the other site easier as you could see all the posts at the same time being a computer numpty this was much better for me I also dont seem to get a clear picture on either:-(
Best Regards Jo >:-)

Hello Bridget

Will power whats that, mine was last seen disapearing over the hill fast.
Since I have been on steriods I look like a barrel on legs put me in a tutu and I could join the elephant circus. Its not chocalate for me as I am not supposed to have it its nuts which are my favourite snack never really thought of them as fattening but I…[Read more]

Hi Jenny,

I just wanted to say good luck with the next period for you. It must be hard to selfless in this and help him in what he wants, when the last thing you guys will want is to lose him. But you sound like a close family and I hope you have the support around you that will help.

Good luck with the decision making, the conversations…[Read more]

Hello Ron

welcome to the site I know you will find all the help and advise you need here, I did. I was diagnosed two years ago and one of the first treatments I had was seven units of blood as I was so anaemic this was partly due to the fact my kidneys had failed I continued to have two units every month for at least six months it really helped…[Read more]

Hi Tina,

Really sorry to hear that Patrick is out of remission, especially after a rotten christmas. I hope that they manage to get him sorted over the next few weeks and months and that he isn't suffering too much with it all….and that you aren't either.

Thinking of you
x

Hi Roz,

That is an amazing amount and I am just so sorry that the money came from Michael passing away.

MyelomaUK will write to you to confirm they have had it, but if you are worried, drop them an email, or call them. Sometimes, it takes a few days for them to process things.

I am sure they will be so pleased to receive the…[Read more]

Hiya Jean,

CONGRATULATIONS!!!:-D
What lovely lovely news for you and Frank!! Really happy for you and she is beautiful!

Hope you get to enjoy some cuddles very soon!
Debs x

Hello Jean
A new grandaughter how wonderful congratulations

Love Jo 😀

Hello Bridget

So glad to heard they have arrenged your RT treastment so quickly it must be so awful for you to be constantly in pain (all of you ) it must be much easier to cope without it, its a pity you cannot stay at Uch rather than travelling but I expect you may feel more confortable at home. fingers crossed for the revlimid I am sure you…[Read more]

Hello Michelle

hope mum is ok with the infusion I have had pamidrinate for the last eighteen months once a month it made my bones ache at first but after a while I have felt no effects at all I have mine over an hour and a half once a month hope your mum keeps well
Love JO:-D

Great news to hear that you're home. Hope it all goes swimmingly and that you are able to recouperate with no problems.

🙂

Take care
Debs

H Michelle,

I'm on zometa too…..was fine for the first 24 hours, had flu symptoms and aches like i've never known for the next 24 hours, and was then fine. And when I had my second infusion last month I didn't get any side effects at all.

I hope that your mum avoids the side effects, but from what I know (not v much!!) zometa has had a…[Read more]

Hi guys,

I got this too. I don't believe it's a bogus email, but it is one from the Myeloma forums site….i seem to have totally deleted the email off my system (as I don't use the site anyway now), but I know that Andy once wrote on this site trying to encourage people to take a look at his too.

I don't think anyone needs to worry about…[Read more]

Hello Keith

Sorry the monster is back we are all waiting for this dreaded phone call
I dont suppose its ever as bad as the first time we are told it just as if there is a ticking time bomb in us and we just dont know when its going to go off really good luck with the next lot of treatment lets hope it gives you a good long remmission
Keep…[Read more]

Hi Gaye
when I went to the myeloma open day in London there was a lecture from a visiting proffesser from America, who spoke about varius treatment and Pomalidomide was one of them he said that the results were very positive sometimes on their own and some times combined with a steriod he seem to think it was going to be one of the next best…[Read more]

Happy new year David and to all the friends in this group may it be a happy and healthy one for you and all your loved ones
Jo:-)

Hi Gavin,

Things have gone pretty well with the trial so far, and I have to say, in comparison to what I had expected (The devil dex days you hear about, and the sickness etc) it has been much better. It sounds like CRD is slightly easier to tolerate than CTD although I don't know if that has been proven. I haven't had the response to dex that…[Read more]