BADGER replied to the topic Legit! in the forum General 14 years, 9 months ago
Hello Dia
Just managed to arrive thanks to the web team looking forward to more witty ditties
Regards Jo
Debs replied to the topic Knock knock ……….. in the forum General 14 years, 9 months ago
Am slightly worried that I spotted this one straightaway Gaye….what does that say about me???!!!
Debs replied to the topic Starting CTD in 2 weeks in the forum Under 50s 14 years, 9 months ago
Thank you to one and all!
Gaye, please don't ever apologise about giving advice on the under 50 title….I wasn't really sure where to post this one, and to be honest age is irrelevant isn't it. Not always, but definitely on the treatment side!!!
It is good to hear about the fact that a number of people didn't get side effects.
We told the…[Read more]
Debs replied to the topic Discussion forum categories… in the forum General 14 years, 9 months ago
If possible, I think it would be good to see the latest posts without having to go into each category. Otherwise someone might not look at the treatment section who is Under 50 and visa versa. It becomes a bit of a hassle having to go into each one to see if there are any relevant posts.
Do you know when you will transfer the old posts over?…[Read more]
Debs started the topic Starting CTD in 2 weeks. in the forum Under 50s 14 years, 9 months ago
Hi all,
Just thought I'd give an update to say that I'll be starting CTD (first time!) in 2 weeks. I've had some back pain for the last week or so and my consultant seems to think now is the time to hit it and hope that we can stop it before I see any end organ damage.
Feeling surprisingly positive about it all (probably because I don't…[Read more]
Debs replied to the topic Mum back in hospital after a nice holiday in the forum General 14 years, 9 months ago
Hi Michelle
Sorry to hear that your mum hasn't been well and is back in…..at least she's in hospital now and I hope that they get on top of everything pretty fast.
All the best
Debs
Debs replied to the topic London Infoday tomorrow in the forum General 14 years, 10 months ago
Hi everyone,
Well I promised a summary and I'm not sure that I'm going to do very well so sorry up front!!
It was a great day, really well organised and I found it really useful for all those personal reasons you can't really put into writing. It was hard listening to people talk about side effects etc given that I'm probably quite close to…[Read more]
Debs replied to the topic London Infoday tomorrow in the forum General 14 years, 10 months ago
I'll try to take notes Gaye and give a summary of anything interesting that comes up….bit harder for me as I don't quite understand all of the treatment stuff yet, but I'll do my best!!
Debs started the topic London Infoday tomorrow. in the forum General 14 years, 10 months ago
Hi everyone,
Just wondered if any of you were going to the Infoday tomorrow….I'll be there with my hubby Nick, and one of my sisters so it would be great to catch up with anyone who uses the site!!
Great timing with the website as I might now know who to look out for!!!
Debs x
Debs replied to the topic Ok where do you start in the forum Treatment 14 years, 10 months ago
Hmm, Min that is really interesting.
I used to take 8g of curcumin a day. But then over the summer when it looked like I might be moving from smouldering to full myeloma (oh if only it was so easy to know which is which!!)and when I found that my bone marrow had gone from 10% to 50% abnormality in a year, it made me rethink. Up till then it had…[Read more]
Debs replied to the topic Welcome! in the forum General 14 years, 10 months ago
Oooh, I'm liking this! I love the fact that I can see what people look like….we share so much personal information, that it is just great to put names and faces together!
Well done MMUK!!
Debs
