hi Vicki

has colin been offered thalidomide as a maint drug I had that and was ok with it, it could suit him better than some of the others
good luck with the remission
Love Jo x

Blooming good news Tom
onwards and upwards as usual keep on the Vodka must be working;-)
Love and Hugs Jo x

Hello Pat

As we say one step at a time dont you feel good when you achieve small things had a hair cut this week going for a colour on friday taking a chance why not#
bIG HUG FROM Jo x:-P

🙂 😎 😉 😛

Right words Dia as usual
Love JO X

Tina
Yes I am a fellow MyelomaXI trial it's now in remission. I was randomised onto a different maintenance treatment to yourself though. As well as 10mg dose of Revlimid I also get vorinostat too. 3 cycles so far and my only side effect is itchy skin but I have had this since the SCT last year so not sure what specifically causes it. The medics…[Read more]

dia
I agree about IV anti'bs I certainly had an upset stomach when in Hospital a couple of weeks ago when on a high dose I thought I got a DOSE OF c diff oh no! but it was the meds so I think you are probably right, on my chemo at the moment i am on half doses of everything except Velcade and its working this is because of the renal failure so…[Read more]

Hello Carryanne
I am sure you will be ok on CDT i think it is probably the DEX that makes your feet puff up have a word with your DOC when you go it makes my ankles swell a bit I also have pramidrinate once a month which seems to be ok no real side effects
good luck with it all:-)
Love Jo x

Hello Trish

I am on my first relapse only had CDT before now on Velcade seems to be doing ok not many side effects it has a great reputation as a drug so i hope Peter does really well on it
Love Jo x

hi DIA

Who knows its all a mistery to me when i was admitted with temp of 39 my white cells were 12 Hb9.5 only had a cold to start with liquid paras and Iv ANTIb,S soon bought it down why it had not happened before when I have had a cold didnt happen on CDT so perhaps its the Velcade no explaination It happens was the reply no real clue as to…[Read more]

Hi Ozzie
I too am on Velcade had no real side effects but have been having it once a week for four weeks with a week off this regime might suit you better have had two weeks off because of chest infection temp of 39 two day in hospital but been good other wise perhaps your consultant will change you to once a week
Good Luck
Jo

Hello Pat

thanks for your thoughts I found the rush of love for my grandson as soon as he was born it was marvellous for Geoff as well because we were an all girl household before that even the cat was femail.
My hair has gone a bit sraggy as with you my hair is or was very thick not so at the moment so i am going as short as poss but i just…[Read more]

Hello Dia

ANother bit of good news Ethan James didnt want to wait I hope you will be able to see him soon love to you and Janet and the new little one
Love Jo xx

Hi TEBEBE

i hope you get on well with the CDT I did ok on it I think the days that you are down are probably due to the DEX it has a bad effect on me that way
Good Luck and keep well
love Jo x

Dear Joe

well done at university I am sure your dad is with you and so very proud I think its wonderful that you are still running and raising money its eople like you that raise awareness that will bring MM to the fore keep up the good work i echo Jean post your just giving page
Love Jo x

Hello Mavis
thanks for your thoughts I hope you are keeping well and still in remission
Love Jo x

Hello Carryanne

so sorry you have had to join I was diagnose jan 2009 and had CDT this gave me 3yrs 6mths remission I did not have a stem cell as my kidneys were badly damaged CDT was ok for me a few numb toes but no pain the only down side was from the DEX a bit hyper and not much sleep while taking it I was 61 and 1/2 when i diagnosed it was…[Read more]

Congratulations to you too Pat
we only have one grandson but he is the love of our lifes just as i am sure your little granddaughter will be for you:-) hope you are getting on well with the VCD
LovE jO X

Hello Jean and Frank

what wonderful news a little boy something to celebrate at last
Much Love jo jo 🙂 >:-) 😉

hello John
i have regular infusions of pamidronate once a month no real side effects a bit achey at first but after that no bother
I hope she does well this medicine may help keep MM at bay for a bit
Regards Jo

This sounds like good news Dia

keep it up this might be the one to give you a bit of drug free remission
Had three days in hospital this week Geoff took me into A&E 5 o'colck in the morning with a temp of 39 3 days on IV anti B's bad chest infection started with a cold and got worse a lot better now I usually get a winter cold but was probably…[Read more]